Remicade not working?

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Regular Member

Date Joined Oct 2006
Total Posts : 148
   Posted 2/16/2009 2:57 AM (GMT -7)   
I've finished the introduction phase of remicade and that went fine. My symptoms were going away and I was doing alright. But now that I have to wait eight weeks between treatments my symptoms seem to have mostly come back. The only thing I'm not doing is bleeding. As remicade not worked for anyone else?

Regular Member

Date Joined Apr 2006
Total Posts : 84
   Posted 2/16/2009 9:47 AM (GMT -7)   
Does this happen immediately after the infusion or at week 6 or 7?
If it's happening in the week or two prior to the next infusion, maybe they can increase the dose of decrease the time between doses.
If it happening all the time, maybe it's a flare and some steroids may help settle things down.
Are you an Imuran or methotrexate as well as the Remicade? , are you an any other crohns meds?
Diagnosed June 2005 with Crohns (left colon, large bowel)
Diagnosed Osteopenia Feb 2006
Jan07 Arthritis noticed in hands, not too bad yet
Remacide started March 2007, Developed anti-bodies Jan 2008, Remacide stopped Jan 08
Crohns Arthritis Diagnosed January 2008, not getting any better yet
Asthma since childhood
changed my style to silver
changed my clothes to black

Regular Member

Date Joined Oct 2006
Total Posts : 148
   Posted 2/16/2009 10:00 AM (GMT -7)   
I was on methoterxate but they took me off of it and I had a bad reaction to immuran. I was also on humira for a while and pentasa too..

I am on colazol, 32mg of steroids and the remicade but nothing else though. I just had my last treatment on feb 4. I'm kind of worried that my doc won't do anything until a flare up is very apparent and I really hate the hospital it throws me in to panic attacks. He has talked about upping the dose but we're waiting on some blood work to come back.. I don't know what to do
26 y/o
Diagnosed with UC in 06 then it was changed to CD in 07
Humira 40mg bi-weekly, prednisone 32mg, Pentasa, and working on getting Remicade.

Regular Member

Date Joined Oct 2008
Total Posts : 245
   Posted 2/17/2009 12:21 AM (GMT -7)   

I know that it is scary and that you don't see the results yet, with these drugs it can take a while to really see the effects. Stay with it and be strong, you will get through it in the end. There is one thing I have learned about people with crohns, we are really strong deep down and have an unbreakable spirit.
DX November 2008 - after years of searching for an answer
Prednisolone 30mg (now coming of them - yesss) asacol, 3000mg -Omeprazole 40mg for acid reflux - Buscopan 10mg (a daily) Remedeine 30mg-Probiotic

Regular Member

Date Joined Aug 2008
Total Posts : 305
   Posted 2/17/2009 5:34 AM (GMT -7)   
I have been on Remicade for 6 months. It has been a miracle for my arthritis but not as effective on my Chrohn's symptoms. It's better but I still have symptoms. The Remicade seems to wear off around 6 weeks for me. I told my GI but he doesnt seemed too concerned. I've asked for more frequent doses but he's hesitant about doing that so I just tough it out. Within 24 hours after my infusion I feel great again. I'm amazed at how differently Crohn's effects everyone. No wonder a cure is so elusive.
Crohns 30 years. Ileostomy for 15 years. Symptom free for 14 years until 6 months ago. Now on Remicade and iron. Feeling like a champ!
God Bless. Tony

Regular Member

Date Joined Oct 2006
Total Posts : 148
   Posted 2/17/2009 8:26 AM (GMT -7)   
The initial treatments helped me so much it was great. Now however, it seems to not touch my symptoms. For example, I had my last treatment on feb 4th or so and I'm back to where I was when I started remicade. I'm seriously thinking surgery may help.
26 y/o
Diagnosed with UC in 06 then it was changed to CD in 07
Humira 40mg bi-weekly, prednisone 32mg, Pentasa, and working on getting Remicade.

there's Hope
Regular Member

Date Joined Nov 2006
Total Posts : 145
   Posted 2/17/2009 10:33 AM (GMT -7)   
I find my remicade wears off the last week or two and my doc also is hesitant to increase the dosage or do them more often saying there are more risks that come with that.
It works for me most the time tho so I like it, I hope you are able to find a medication that keeps you in the clear!!!
27 year old female. Dx with UC in June 2003. Flare up in June 2006 led to CD dx. Steroid dependant and flaring out of control I started Remicade in Jan 2007 which lead me to remission... Until now :P Feb 2009 came with another flare..
Current Meds: Remicade, Asacol, Bentyl, Phenergan, Reglan, Ultram, Celexa, Seaonale, Invega, Nurotin, Iron, Fish Oil, Lacto and a Multi Vitamin

"There's Hope. It doesn't cost a thing to smile; You don't have to pay to laugh; You better thank God for that!"

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