Urgency Issues!

Hi: I am wondering if anyone can provide some ideas for urgency issues. I used to think I had urgency issues.... Ha, Ha, Ha. Now I really have urgency issues .... BAD! Literally sometimes I have like 1 second! I have been flaring for over 4 years and can't seem to get it under control, and the urgency has definitely gotten worse over the past year or so.

I've tried Immodium a little bit, but not a lot. It just seemed to make me gassy. I also do use a fiber supplement which helps a little too. Doctor just suggested I up my Immodium to 1 pill/4 times daily, but I hate to keep introducing new things...

Any thoughts? Thanks for your help.

Yes, I feel better if I don't eat anything. Literally basics like liquids, rice, etc. go through me. I've had food allergy tests and know what to avoid but maybe an elimination diet is a good idea, if not a very hard one...

I went thru the same thing for 4 yrs. Baths to relax hard muscle spasms helped in the morning and evenings. It made me feel better. There is definitely a connection between eating how much and how often and number of urgent runs to bathrooms. I wear protection now so if I do have an accident it doesn't get all over. Then I head to the bathroom without leaking out. I go out in public now without as much worry. Hope your new medicine works for you.

Hi I have the same problem and end up losing control every day of the week but mine is due to active disease in the ileum and rectum area so my GI says and once that is under control then perhaps it will ease up. I also have a stricture and currently trying several drugs to get on top of it. Do you also have active disease in the lower end of the bowel? If I was able to keep it in my GI says one of the best meds to help with that would be colifoam or predsol suppositories. I have tried everything. Keep us posted, good luck

Irishgirl: I went off Humira because it didn't work. And, I was getting reactions to it too -- my whole body was crazy itchy all the time and I'd get a huge and I mean huge injection welt every time. I was on it for eight months, kept thinking it was working, but it never did. Is Remicaid working for you? It isn't for me yet... I have my third infusion next week.

Trigirl: Thanks for the advice on Goodnights, I will look for them. My three year old daughter who just got potty-trained will think it's really funny that mommy is wearing a diaper.

Andorable: I do have disease in my lower bowel, but my doctor told me my rectum was spared. Although my last colonoscopy he said it was very inflamed, so not sure if it really is spared. Will have to ask him more about it. Never heard of colifoam or predsol suppositories, but will ask him about those too.

I am trying the immodium and it does seem to be helping a bit too. It's funny that all the crazy expensive scary meds I am taking do nothing for me, but good old in-my-closet immodium helps.

Thanks for all your advice!!!!