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New Member

Date Joined Feb 2009
Total Posts : 4
   Posted 2/23/2009 4:30 PM (GMT -7)   

Hello, I'm 60 years of age and have been suffering from Crohn's since my early 20's. Within the past few years I have had a few dilatations, but on having the last, I was rushed back into hospital due to an internal bleed.


I have been told by my specialist that they can no longer carry out these dilatations and as a result, have suggest I go onto Infliximab, but I am very apprehensive about this, as there are so many side effects (I know there are many side effects with drugs and I'm currently taking drugs with side effects), does anyone take the above drug and have you had any problems?


Thanks Ben.

Forum Moderator

Date Joined Nov 2003
Total Posts : 7122
   Posted 2/23/2009 4:49 PM (GMT -7)   
Welcome to Healing Well, Ben! Sorry to learn that you have been having difficulties of late. Many of us here are on or have been on Remicade or Humira, another biologic used to treat CD. One of our other moderators very nicely made a thread that has many, many links to members discussions about various medications including Infliximab [Remicade]. I encourage you to read these threads while you wait for others to answer.
Ivy's medication list:

Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.

New Member

Date Joined Feb 2009
Total Posts : 4
   Posted 2/24/2009 3:38 AM (GMT -7)   

Thank you for your reply.



Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 2/24/2009 5:16 AM (GMT -7)   
Hi Ben ,I know it is a worry at times starting new meds. I myself and many others feel the same way. For some it seems to outweigh the risk of problems associated with crohn.s .Hope Ivy's med list helps you. I was on it for 6 months and it healed a fistula but went into a major flare so it did not help me after that. Let us know what you decide. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still gail

Regular Member

Date Joined Feb 2009
Total Posts : 269
   Posted 2/24/2009 6:57 AM (GMT -7)   
Hi Ben

I went on imfliximab Oct 2008 after becoming steriod dependant. I have noiw had 4 infusions and am due my 5th in 3 weeks. I have just found that I get a few days of sinus pain which I counter act with sinutab. I drive straight after my infusion and feel fine.

It also makes you more prone to infections such as virus and flu, you will find them harder to get rid of. But in 5 montsh I have only had 2 virus infections so its not that bad.

Hope that gives you a bit more information, good luck

Veteran Member

Date Joined Apr 2005
Total Posts : 2346
   Posted 2/24/2009 7:05 AM (GMT -7)   
I'm almost at my 4 1/2 yr mark of remicade...have had absolutely no problems with it.

New Member

Date Joined Feb 2009
Total Posts : 6
   Posted 2/24/2009 2:49 PM (GMT -7)   
Hi... I started Inflixmab on October after 7 months on steroids and my imflammatory markers sky high still. I am due my 5th infusion next month.... All i can say is it was like a miracle im now only on 2 mg of steriods and pentasa... The only side effect i get from the treatment is feeling very tired that evening.. My mum said after the 2nd infusion i was like a different person.... Im sooo greatful its around ...
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