Remicade was my miracle drug for a long time. I tried a "double-dose" one time, and I felt like I had been run over and beaten for about 3 days... no serious and/or life-threatening reaction, just kinda sucked.
In the end, more frequent doses (sometimes every 4 weeks) worked for me better than larger doses.
I was scared to death when I could tell the Remicade was wearing off, and I COMPLETELY understand about the Humira. I went through with the Humira just long enough to almost lose my marbles (having my hubby give me the shots was STILL too much for my mental well-being). After two rounds of Humira, I threw a fit and got my doc to approve me for Cimzia instead. With Cimzia, a nurse comes to the house (paid for by the drug company), and gives me the two shots in my belly. It really is NOT that bad, and as long as the nurse goes slow, it doesn't even really hurt. That's coming from a baby, just so you know.
There are other options out there, when the time comes. Meanwhile, good luck with everything, and I'll be sending good thoughts your way.
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
Remicade '05 through '08, with no other maintenance meds
Noticing a real difference with a Gluten-Free diet.
Cimzia (loading doses 2-12-09)
Probiotics, Digestive Enzymes, and Prednisone