I'm amazed they didn't do a colonoscopy right off the bat, too. I think so many intestinal issues could be solved immediately if docs would do colonoscopies without assuming it's something LESS major first. I never in a MILLION years would have thought my large intestine was riddled with bloody ulcers...I never have blood in my stool - not even occult blood.
I repsonded to your other thread, too. I was diagnosed with 5 tests:
#1) Upper GI with Small Bowel Follow Thru. This test showed my Upper GI to be normal & my Small Bowel to be NARROW.
#2) Abdominal CT Scan. This test showed all of my organs to be doing fine with the exception of some inflammation in my large intestine.
#3) Blood work. I can't remember the name of this blood test but it is specific for Crohn's Disease markers. These markers came back as a 98.6% chance I had Crohn's.
#4) Upper Endoscopy. This test showed the top of my small intestine was fine as was my stomach & throat.
#5) Colonoscopy. This test showed what I said above...bloody ulcers scattered throughout the length of my large intestine with healthy colon inbetween.
With those 5 tests, along with all the other "extra" intestinal symptoms I was having (mouth sores, skin lesions, rapid weight loss, swollen ankles, back pain, etc.) I was easily diagnosed with Crohn's.
I had symptoms 2 years prior to the diagnosis, though, because I was misdiagnosed with IBS, which is quite typical. And it's hard when you have "spells" of this stuff; because it's easy when you start to feel better/normal again to kind of forget you were sick and go without asking your doctors more questions.
And I often wonder if I'd had all those tests 2 years prior to when I did, if my disease would have been as progressed as it was. If I'd had the colonoscopy in 2002 instead of 2004, would the ulcers have been there or not?
Sorry, but I just have to vent on this one thing: about
whoever it was that told you to "watch what you eat". I mean, come on Crohnies?!?! Isn't that just typical??? It's true, some of us can't handle some types of food, but when my Crohn's isn't flaring and everything else is going ok, I can usually eat anything I want...not that I SHOULD, but if I want nachos, am hungry for nachos and my intestines are at a point that they can handle the nachos, by GOD I'm going to eat the nachos!
I just get irritated with people who don't have intestinal problems who tell people who do to "watch what they eat"...as if FOOD is always the culprit. IT'S NOT!
Ok...thanks for letting me vent.
Diagnosed in October, 2004 at age 32.
Current Rx's: Colazal (generic), Omeprazole, Ferrous Sulfate, Librax, One-A-Day multivitamin, Probiotic, Omega-3 Fish Oil, Vitamin D, Vitamin A, Calcium-Magnesium-Zinc, Cranberry pills
Secondary conditions: mouth ulcers, joint pain, swelling ankles, extreme fatigue
Previous/occasional Rx's: 20mg Prednisone taper, Flagyl, Levaquin
No surgeries to date
Post Edited (Kittikatt) : 2/26/2009 1:16:23 PM (GMT-7)