Just wanted to introduce myself. I am 41 and was diagnosed in my early 20's with CD after many mistakes and blow-offs. In 1992, at the age of 25, a wonderful dr. in Philadelphia finally diagnosed me but by then the disease was fairly advanced. In February of 1993, I required an emergency hospitalization and after many awful tests and 2 weeks was found to have a perforation of the small bowel. I had a resection after removal of my terminal ileum and cecum a couple of days later and left the hospital 10 days after that
open surgery. Recovery was difficult, but mostly psychological because it all seemed to happen so fast and I was so young!! 11 months later, I was married, and 10 months after that I delivered my first child, a healthy boy (over 9 lbs which I swear was due to the remaining steroids lingering in my system - I don't think they EVER really leave you!!). I now have three children.
I found your site after doing a search on nutrition and felt compelled to join and comment, but mostly to give HOPE!!
I have been in remission since my resection in 1993 - It will be 16 YEARS on March 12!! I currently have been off ALL meds for 5 or 6 years but before that was on Pentasa. I do take Bentyl for occasional stomach cramps due to accompanying IBS. I do experience frequent bouts of D that I feel are mostly related to diet(which is why I was researching nutrition on the web!). I am lactose intolerant and must avoid alcohol and very spicy foods. Recently, I have started to add much more fiber to my diet and have never felt more normal.
I am so happy I found this forum because I have never known anyone else with this disease!! I would love for all of you to pick my brain and hope you allow me to share with you my experiences over the last 16 years - including marriage, intimacy, pregnancy, child rearing (my oldest is 14 now and my youngest is 6), medical care, and anything else you can think of.