My heart goes out to you as I've felt the same way for the past 2 weeks. I've missed a week of work. I'd go into work then I'd get nauseated, or have sick BM's or just start crying because my overall body felt so weak from lack of sleep and lack of nourishment and so on and so on...I just couldn't stay in the office anymore.
I've been MASSIVELY fatigued. My gut is worse than normal thanks to Iron pills. I just found out I have gall stones (out comes the gall bladder next month) so the meds they've got me on to keep THAT pain at bay is making me nauseous...Catch-22. I feel like I'm going to float away every time I take my meds during the day.
Yesterday I was feeling "ok"...enough to sit down and talk with my boss. 3 hours later I was rushing out the door to go home because I felt so bad...hence, the unpredictability you spoke about. It's SO frustrating.
I'm tired of being tired EVERY SINGLE DAY. If my upper abdomen isn't hurting from the gall stones, my bowels are in overdrive. If my bowels are REALLY making me sick, I'm vomiting, too. If my bowels are doing OK for the moment, I'm so tired I can barely keep my head up.
I'm usually very positive about my illness...but when it doesn't let up on me for weeks on end and it takes so much time to find out what's going on (like the gall stones...I've had the pain since August but it took til February for a doctor to say, "Hmmm...let's get you a GB ultrasound.")...well, it's just FRUSTRATING and UPSETTING. I get to the point sometimes where I just cry because I'm just tired or achy or a bit of depression.
But it WILL let up. I know it will...for me, for you, for everyone. Sometimes when you go for so long withOUT feeling good, it's hard to see that there will ever be a day when you feel good again...and it's hard to remember the last time you DID feel good. But keep the faith...this TOO shall pass.
Don't you just love this board??? Even when you JUST want to vent, there are people right there with you who REALLY get it (unlike most of our non-Crohnie family & friends). There are people who understand exactly what you're going through.
HANG IN THERE!!!! Tomorrow may be a really GOOD day.
Diagnosed in October, 2004 at age 32.
Current Rx's: Colazal (generic), Omeprazole, Ferrous Sulfate, Librax, One-A-Day multivitamin, Probiotic, Omega-3 Fish Oil, Vitamin D, Vitamin A, Calcium-Magnesium-Zinc, Cranberry pills
Secondary conditions: mouth ulcers, joint pain, swelling ankles, extreme fatigue
Previous/occasional Rx's: 20mg Prednisone taper, Flagyl, Levaquin
No surgeries to date