Thanks for the concern Nanners.....but yes I continue to have issues. The surgery never really fixxed everything, just the major issue of the small bowel. They found areas of concern in the large intestine when they took it out and looked it over....but surgery was not required.
Went back in yesterday for a colonoscopy and things were not good....two strictures...ulcers...the works. Things have gotten worse not better they said. So now we are sure that the Humira is useless (for me) and it is time to try something else. I know it sounds crazy that i am extremely concerned about remicaid but not to concerned to go back on Tysabri....but I know Tysabri works. I do not know anything about Cimzia....when I left the clinic yesterday the doctor said I should study up on both and let him know what I wanted to do....I go back to see him in 2 weeks so I am getting my information ducks in a row.
dx IBS 1999 UC 2000 CD 2001
Tested BIOGEN TYSABRI (gave me 2 years of remission)
tried Naltrexone Jan. 19, 2007 Stopped the Naltrexone July 28th...started Humira Aug 31st, 2007...current dose one shot every week. Also nightly dose of mesalamine.
Surgery Nov 4th, 2008 removed 30 inches of small bowel.
Crohns is currently active and has been since April of 2005
52 yrs old