I'm a bit surprised they wouldn't have done a Colonoscopy AFTER the test came back showing your intestines were inflamed...particularly based on your prior intestinal history.
The reason I say that is because I was having much of the same symptoms as you before being Dx with Crohn's. I HAD been Dx with IBS up until I told my family physician that my BM's were waking me up in the middle of the night and I was pooping 5-6x during the overnights. When I told him that, he knew that was NOT a good sign and sent me to a GI.
The GI sent me for an Upper GI with Small Bowel Follow Thru test which showed narrowing in the small intestine (that's the X-ray test where you drink 2 types of barium). I was also sent at the same time for an Abdominal CT Scan (that's where they inject a dye into you and run you through a big machine/hole). That test showed a little bit of inflammation in my large intestine. Based on those TWO results, my GI scheduled an Upper Endoscopy and Colonoscopy and also ordered a blood test that shows the markers for Crohn's Disease.
The Upper Endoscopy was clear but the Colonoscopy showed that my large intestine was riddled with large, bloody ulcers. And the blood test came back as a 98.6% cause for Crohn's Disease. So all those tests, along with other symptoms got me Dx with Crohn's. My GI immediately put me on a Crohn's maintenance drug and I went into remission for 4 years.
The Bentyl will definitely make you feel better for the time being but what would ALSO make you feel better (I think) is to ask for a Colonoscopy...so you'll know if there IS or IS NOT anything serious going on up in there. Not to scare you...but I never in a million YEARS would have thought my large intestine had so many ulcers. And the Colonoscopy was the nail in the coffin for my diagnosis. Had they NOT done the Colonoscopy, I'd probably have been sent home with no real Dx and no maintenance drugs and had to have had surgery by now.
You're not paranoid...and whether or not you do have Crohn's, EVERYONE here on this board understands how you're feeling. Intestinal issues SUCK and they're often hard to talk about
just out in the
open to coworkers or even family and friends. Good luck and let us know how the follow-up with the GI goes.
Diagnosed in October, 2004 at age 32.
Current Rx's: Colazal (generic), Omeprazole, Ferrous Sulfate, Librax, One-A-Day multivitamin, Probiotic, Omega-3 Fish Oil, Vitamin D, Vitamin A, Calcium-Magnesium-Zinc, Cranberry pills
Secondary conditions: mouth ulcers, joint pain, swelling ankles, extreme fatigue
Previous/occasional Rx's: 20mg Prednisone taper, Flagyl, Levaquin
No surgeries to date