I started Anti-MAP therapy

I've been reading up on the anti-MAP stuff a lot lately, I find it really interesting. How long ago did you start the antibiotics? Have you noticed any improvement yet?

I am very interested in the anti-map theory. Please provide more info.

Which country do you live in?
What antibiotics are you taking?
How long do you have to take them?

I hope it works, and please please let us know!

I live in the USA. I am taking clofazimine, mycobutin, and clarithromycin. Ramping up the dose after a month.

Thanks. How are you doing staying away from gluten and dairy? That helped me a lot.

I'd stay off it all. SCD worked wonders for me, except I fell off the bandwagon 4 months into it and haven't been able to get back on.

I spoke with a very well known crohn's researcher who told me to keep watching the research being done on mycobacteria.  He seems to think it very promising.  It seems that a lot of people who have gone the "natural route" have used probiotics and various techniques to rid the colon of bad bacteria and cultivate good bacteria.  If a bacteria is responible for this disease then I think it may help to explain better why certain people are able to get better without drugs.

Jay,

Excellent news. Please keep us updated. I have an appointment next week with my GP to convince him to put me on them.

I have been having test done -specimens, scopes, bloodwork- that have shown bad bacteria in my bowels and
very little of the good stuff. I see my dr on thursday to discuss the results and a treatment plan.
I am really excited that this new treatment will help many crohn's patients!
Let us know how you are doing.

No. But from the research done, about 90% of Crohn's patients have MAP

I too would like to see this research. Not to be argumentative in anyway, but I don't think MAP is the end all to be all and don't believe that most of us have it. This is just one theory among many. I do hope for your sake though that this is the answer for you, but don't necessary believe that its the case for all of us. JMHO

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Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.

*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

^{*~* https://www.healingwell.com/donate *~*}

Hello Everybody.

I had an ileocolectomy in October, and the lab is supposed to be able to test the specimen removed for MAP, although I requested the test about a month ago and haven't gotten the results back yet. I am told it takes a while...we'll see. I am from Alaska, but in Seattle right now, for an appointment with a Gastroenterologist. This particular doctor made me feel silly for even asking about anti-MAP treatment and pretty much says Humira or Remicade is my only option (in her opinion--since I apparently have "fistulizing" Crohn's and currently have a fistula to the skin)....Anyways, I've been trying to find a doctor/gastroenterologist that has experience treating people with antibiotics. I did find a Dr. in Florida that used to do so, but stopped because of the FDA for some reason.

Does anybody know of a good Dr. I could go see (anywhere!) that would be able to give me another opinion and prescribe antibiotics????

I am wary of starting Humira or Remicade...I would love an opinion from a doctor that isn't trying to push $2,000 shots on me after a 15 minute visit. I also find the MAP theory very interesting and would like to get as much info as I can about progress with the treatment.

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craizy_daizy

-22 y/o alaskan
-resection oct '08
-diagnosed nov '08
-currently on asacol & flagyl

Hi everyone!!

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Post Edited By Moderator (MMMNAVY) : 3/13/2009 6:51:43 AM (GMT-6)