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Veteran Member

Date Joined Oct 2007
Total Posts : 1190
   Posted 3/13/2009 2:42 AM (GMT -7)   
I am told that even normal people without IBD might have some inflammation in their gut and that sometimes it goes untreated. e.g. there are a large number of Chrohn's patients who had one episode, got fixed, still have a little inflammation but aren't on any meds and live their life as normal with no symptons.
So I ask the forum this, if you were found to have some mild or moderate inflammation in your digestive tract but you had no symptoms, no mucous, no urgency and no blood - would you let it be? Or would you risk further damage or even a flare by trying to aggressively treat it?

Diagnosis Oct 07 and then Aug 08: Inditerminate Colitis currently under some. Current Medication: 500mg Asacol Suppositories, 800mg Asacol Tablets x 2 a day.

Veteran Member

Date Joined Mar 2006
Total Posts : 2739
   Posted 3/13/2009 3:05 AM (GMT -7)   
I'm not sure that a great number of Crohn's patients only see one flare up their whole life. I would call them the very lucky! Although I think most of us go through periods of months to years where we do good.
For me I had inflammation smoldering in my guts for about 10 years before getting diagnosed. It ate away until I got a really bad ulcer that caused me to severly bleed. Some of those years I thought I was doing quite well, and doctors only had told me I had IBS.
So I like staying on Asacol to helpfully keep that inflammation down, and prolong me going in to a flare. It's mild enough that I don't mind.

Diagnosed with Crohn's Disease 2/06, and Health Anxiety/OCD 12/08 Taking Asacol, Questran, Toprol XL, and Lexapro.

Regular Member

Date Joined Sep 2008
Total Posts : 457
   Posted 3/13/2009 3:25 AM (GMT -7)   
For 12 years I thought I was handling the symptoms on my own and then the strictures began, but I believed the ER docs when they told me it was just an intestinal virus. I wish I would have been more educated on this disease and I would have been more aggressive in my treatment. Maybe then I would have a better quality of life now.

Dx'd with Crohns 1984 and polycystic kidney diease in 1996
I was in remission for 16 years, Bowel Resection surgery 2006, Now on Asacol, folic acid, and Enalapril, Have been flaring on and off since August.
I love my life and everyday I pray that my body cooporates and allows me to do what I have planned.

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 3/13/2009 4:06 AM (GMT -7)   
Hi I don't think I would get too aggresive but at the same time things need to be kept a eye on and the lower meds might help to keep things good in there. Some cases are mild.. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still gail

Veteran Member

Date Joined Dec 2008
Total Posts : 947
   Posted 3/13/2009 4:17 AM (GMT -7)   
I was dx inn 2001 and was told that it was a very mild case and that I would never need surgery. I was on Asacol from 2001-present. I just had a resection.Now it's decision time as to treat with more aggresive drugs or stay on the Asacol.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Folic Acid, Multivitamin, Dbl. Calcium, Probiotics, Protonix, Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 3/13/2009 6:32 AM (GMT -7)   
I once enjoyed a 20 year remission med free. I will tell you I will never do that again as my remission ended with an emergency resection. I now take only Asacol to control my Crohns. Better to keep the inflammation in check to help avoid problems later. JMHO
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
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