So as some of you might have read, I had a reacurring abscess after my last resection, it came back a total of 3 times, and now its turned into a fistula. So now I have crap (litterally) coming out of a hole in my stomach right above my bellybutton...real cute. My GI surgeon refused to believe it was a fistula, but my recent ER trip has proved him wrong. I just had an appointment with him last week, and he told me I would basically have to deal with it until my Crohns is in remission, mind you I've never been in remission in the 7 years Ive had this disease. He told me just to pack it and change it a couple times a day. Im sorry but I refuse to believe nothing can be done to help this. He said he will not do surgery until my Crohns is under control because that is what caused the fistula. But his words right before that was it was caused from the amount of prednisone I was on when I had my surgery (60mg), Ive been off the prednisone for 3 months, and this fistula just appeared maybe 3 weeks ago. He followed that by saying "This is not my fault! If I blew the surgery I would say so!" Im thinking he thinks Im going to sue him, and thats why he doesnt want to touch me. Ive noticed that while Im standing the drainage is minimal but while I sleep, lay down or am sitting, thats when its worse. Ive been told to pack it, Ive also been told not to pack it...so far Ive been packing it because Im afraid it will close and then get extremely painful when theres enough gunk in it to push it open again. Has anyone had this kind of fistula, and what did you do about it, did you pack it or not? Did you have surgery to fix it, or did you just let it go?
Dianogsed with Crohns: At 16 years old. 22 years old now.
Surgeries:2 Bowel Resections, Gallbladder Removed.
Current Meds: Imuran 50mg, Vitamin B12 (injection), D, and C tablets. Fish Oil Tablets, Cats Claw, Slippery Elm, and Reishi.