Well thank you very much to everyone for trying to help. I am going to try to respond to everyone with 1 e-mail!
As far as medications I have been on, when I say everything, I mean everything. Yes, Remicade and Humira to be included. No, I am not on ensure and am barely eating much @ all. It goes up and down as far as when and how much I eat. I drink a ton!!
I have had no surgery. My Crohn's is throughout my intestined and my whole colon.
I have gotten a second opinion about 7 times including the Mayo Clinic.
Right now I just need a pain medication that will help my pain until a cure or a new drug comes available that I am able to go on that may help. I have a lot of hope and a great attitude and I always will :). You have to!
: could you tell me more about
the pain med that you are talking about
? Is that what you take? What is the diff in your experience between that and percocet? I do go to hosp. for pain management when needed, which is often, but very expensive, so have to be careful there. But I have a lot of help no matter what, so I don't go because of that if needed.
I have had Crohn's since I was 21 years old and I am now almost 28....
I am currently on Prednisone and have tired literally every drug available.
Unfortunately, nothing has worked for me. But I will keep on going and trying everything possible!
Also recovering from a blood clot in my lung and of course the blood thinners really messed up my bleeding from my Crohn's....