Update! Now have ileostomy

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Veteran Member

Date Joined Jun 2005
Total Posts : 981
   Posted 3/16/2009 6:33 AM (GMT -7)   
Hi all,
Well I have just spent the past 4 weeks in hospital very sick and ended up with an ileostomy. As a lot of you are aware I have been battling this DD for a long long time and trying pretty much every drug there was on the market to avoid this from happening. I was at the point where I was running to the toilet in excess of around 25 times a day and was falling apart both physically and mentally. I was totally confined to the home and had faecal incontinence on a daily basis, until that one day 4 weeks ago I made a desperate drive to my doctors office for some kind of pain relief and she took one look at me and called for the ambulance to get me in ICU at my local hospital, I was seriously malnourished and was then transferred to a larger city hospital where I spent a lot of time while they were trying to get me well enough to be able to cope with surgery. Finally it happened after 2 weeks they figured I was strong enough for surgery and went ahead and did the ileostomy. I went into surgery on wednesday the 4th of march at 2.30pm that afternoon and was done by 8pm that night, I woke at about 7am the next morning with the physio therapist asking if i wanted to try and sit up, I felt the best I had felt in years and followed her directions to the point I even had a sit down shower that day, I barely had any pain at all, my surgeon came in to see me and said my large bowel was horrible it was so badly diseased and said that was probably why I felt so good so fast was that all that toxic bowel had now gone. But of course I knew it had to be short lived because 4 days after the surgery I started to run temps around  39 and 40 degrees c, and was in the worst pain ever so they then rushed me off for a ct scan to discover a collection in my abdomen that required going back to surgery that day, at that point the pain was so bad I was begging them to knock me out. So finally had the second surgery to remove some blood and infection build up and have a drain in my abdomen and dealing with an ileostomy has all been extremely overwelming. I have had a lot of tears but look forward to having some quality of life. Im sure I will have a lot of good and bad days to come but Im alive and have hope that things can only get better from here on. thanks all for your wonderful support, and I will stick around to see how u are all getting along and keep u posted on my progress.
take care

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 3/16/2009 7:08 AM (GMT -7)   
WOW what a horrible ride you had!! I pray the surgery brings you to a long long remission. You definetly deserve it after all you have been thru.

Big Hugs,
Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Oct 2007
Total Posts : 1190
   Posted 3/16/2009 7:24 AM (GMT -7)   
God Willing you and all those in pain will get better. Well done for living with this mate.

Diagnosis Oct 07 and then Aug 08: Inditerminate Patchy Colitis. Also suffer from Peptic Ulcers could be related to Asacol. Current Medication: 500mg Asacol Suppositories, 800mg Asacol Tablets x 2 a day.

Regular Member

Date Joined Feb 2005
Total Posts : 200
   Posted 3/16/2009 7:34 AM (GMT -7)   
I'm glad you came through everything alright! As scary as that had to have been I hope it brings you great relief from this DD.

Rider Fan
Veteran Member

Date Joined May 2008
Total Posts : 1445
   Posted 3/16/2009 8:02 AM (GMT -7)   
We're here for you, take care of yourself. This is probably a new start for you!
32 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira. 22.5mg prednisone. Udo's Choice Probiotics (30 billion).

Tried SCD, didn't work, now avoiding gluten and dairy.

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 3/16/2009 11:05 AM (GMT -7)   
Hi Thanks for the update and gee you have had a hard go ..hope as you say things will now improve so your life will be better ...Hope your recovery goes good it is good when a person's strength returns and to be home.. I am assuming you are home now..keep in touch...lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 3/16/2009 4:30 PM (GMT -7)   
Andorable, I am so glad to hear from you, and so glad to know that you have an ostomy. You were in such a bad way, and I hope that this will bring you many happy and healthier days in the future.

I know the adjustment process will be hard, and please know that we are all with you, caring and supporting you, through the weeks, months and years ahead.

*huge hug* And good on you for having the courage to go through with it!
Co-Moderator Crohn's Forum.

Veteran Member

Date Joined Jun 2005
Total Posts : 981
   Posted 3/16/2009 4:48 PM (GMT -7)   
Thanks for your kind words everyone it means a lot. take care

Veteran Member

Date Joined May 2005
Total Posts : 4219
   Posted 3/16/2009 5:35 PM (GMT -7)   
Glad to hear from you and hope that you have no where to go but better from here!
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 

Veteran Member

Date Joined Apr 2005
Total Posts : 2346
   Posted 3/16/2009 6:29 PM (GMT -7)   
So glad to hear that you are doing better! Keep hanging in there!

Veteran Member

Date Joined Jan 2003
Total Posts : 6131
   Posted 3/16/2009 8:55 PM (GMT -7)   
hang in there! feel better soon.


Veteran Member

Date Joined Mar 2006
Total Posts : 1354
   Posted 3/17/2009 5:22 PM (GMT -7)   
I was wondering how you were going Andorable, you have been through the wringer haven't you.
I hope your ostomy gives you permanent remission - please keep checking in.
Take care
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