As I posted in the other thread about
PG I have done extensive research along with my Doc of this DD
I had seen every TOP notch specialist like you
Nothing was determined
I fell thru the crack of the health system here I was told that enough times
I was on IV Vanco for mths at a time from my old doc
I now am in a lawsuit with him and other doc's backing me due to total hearing loss in one ear and
I am losing it i other it seems daily
Vanco is a great antibiotic but not for the long term usage I was put on it ...it is a rare side effect of the med but nonetheless I got it .....
My sores/outbreaks always started as a pustule and literally grew over night ......you could watch them grow
I DO have pics posted if I can find them I will put them up ......
It took yrs for me to be finally DX with this PG and many more with Crohns and UC are finding they too are now developing it
As for a PICC line I have had one and my doc will not allow another as he is so worried that a sore will/can start in there as well around Picc Line Area
I KNOW that pain n I would give birth to triplets w/o anything to help lol then go thru what it puts me thru
I always have had first dose of IV meds at hospital and only have nurse come here if I go intrasticcial
Which is not so much anymore
ALSO since I have moved from one area to here I have only had few break outs.......
Where I lived before I was always broken out
Stress and trauma do alot to this as well
I am also on MTX Folic Acid and Cefelexain( sp) when in one now
I catch it as soon as possible..Oxycontin 80 mgs 2 times a day and 40 mgs a day with percocets for b/.t pain......
I am so glad you ARE being your BEST advocate here it is truly needed with this DD
Email me if you need to talk okay
Thanks for posting this and keeping ppl aware
YES branding iron is the way I describe it
CO Moderator @ Anxiety and Panic........Co Moderator @ Crohns
Keep The Fight Going..Or YOu Will Lose
Look For The GOOD, Even At Your Lowest
We Have Anxiety and Panic...................Anxiety and Panic DO NOT Have us
Post Edited (Howlyncat) : 3/17/2009 1:43:16 PM (GMT-6)