New member (and questions about losing weight)...

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Miss J
Regular Member

Date Joined Mar 2009
Total Posts : 27
   Posted 3/17/2009 9:02 PM (GMT -7)   
Hi folks,
I'm brand new here and would like to give everyone a hearty "hello".  I'm 26, female, and was diagnosed with Crohn's in 2004.  The disease was considered mild at the time, with flareups not being particularly too severe or lasting forever.  Therefore, I did my best to manage my symptoms with diet, and experienced acceptable success with that strategy.
However, today my problem is two-fold, and I'm hoping to get some advice from fellow IBD sufferers.
First, my flareups are getting worse every year, both in frequency (I now have a "miniflare" in conjunction with every menstrual cycle) and in severity (the 6-weeklong flare I'm currently experiencing sent me to the hospital for the first time).  Hence I find myself on Prednisone to try to control the current flare, and am looking into more patient-friendly drugs for long-term therapy.  I will undergoing another colonoscopy in the near future to determine the progress of the disease since the initial diagnosis five years ago.
Secondly, I have many other medical conditions, among which was thyroid cancer I was diagnosed with a few months after I was told I had Crohn's.  Throughout my four-year battle with the disease, I gained 65 pounds from the side effects of treatment, going from a svelte and athletic 125 pounds to my current all-time high of 190.
I've been in remission from the cancer for one year (woo hoo!), and in celebration would like to lose some of the excess baggage.  I don't care if I'm a size 4 again, but I would indeed like to regain some of my former athletic abilities (which is a bit hard to do at size 12).
Since most diets call for a high-fiber diet- which would absolutely torment my poor intestines- and I was wondering if any of y'all know of a resource for weight-loss diets specifically tailored for Crohn's/IBD patients?  I've never had a problem with portion control or consuming fattening foods, yet the needle on the scale never budged once my cancer treatment was over and my thyroid levels finally stabilized (and thus finally began properly metabolizing food again). 
Many thanks in advance for any book or website recommendations!
~ alaskaflygirl

Veteran Member

Date Joined Jul 2008
Total Posts : 674
   Posted 3/17/2009 9:33 PM (GMT -7)   
Congrats on the remission!! That has to be a great feeling!!  As for losing the weight, I wish I had an answer for you.  I have been overweight my entire life, I reach my all time low during my last flare (160lbs, yes thats my low haha)  I then gained about 45lbs back from prednisone and all of the other drugs I was on.  Im not sure really how I keep on weight, I have D upwards of 10 times a day. The only thing I can reccomend would be exercise to help burn off the calories, if your not able to eat healthier foods with fiber.  I am the same way as you, my body does not tolerate foods with a lot of fiber, which leaves out most fruits and veggies. I bought myself a wii fit to help me keep track of my progress, and to give me some easy seems to be doing alright Ive lost about 5 pounds.
Dianogsed with Crohns: At 16 years old. 22 years old now.
Surgeries:2 Bowel Resections, Gallbladder Removed.
Current Meds: Imuran 50mg, Vitamin B12 (injection), D, and C tablets. Fish Oil Tablets, Cats Claw, Slippery Elm, and Reishi.

Veteran Member

Date Joined Jun 2008
Total Posts : 1058
   Posted 3/17/2009 9:35 PM (GMT -7)   
The Specific Carbohydrate Diet - Breaking the Vicious Cycle will cause many to lose weight. It is a bit like the Atkins diet, so that is the way it works. It does take a lot of changing your food habits though!

Miss J
Regular Member

Date Joined Mar 2009
Total Posts : 27
   Posted 3/17/2009 9:40 PM (GMT -7)   
Mag- I know, isn't it so strange that everything we eat goes right through us, yet the weight just stays on? I bought a Wii Fit recently as well, but right now exercise isn't an option for me (going through a severe flare and in a lot pain). When I do finally dust it off and start using it, I think I'll start the yoga program first. It's inspiring to hear someone actually lose weight with it, even if it's only a few pounds!

Keeper- I've heard about the specific carb diet before, but I've never been able to tolerate yogurt (or even dairy in large quantities), and those foods seem to be the cornerstone of that particular diet. Thanks for the suggestion, though...I'd forgotten about it, but will mention it to a coworker who has hit the dreaded plateau in her weight loss journey.

Veteran Member

Date Joined Jan 2006
Total Posts : 768
   Posted 3/18/2009 4:15 AM (GMT -7)   
The SCD made me loose weight like crazy because all the carb out out of d diet. Yeah the yogurt isn't great without any additives but honey, blended fruits and other stuff added in made it better. There is the use of Dry curd cottage cheese instead of yogurt. I lost 30 lbs. and went quite under weight for awhile but have evened out and can eat more regular now. I can even eat some raw foods!! (I like carrots)
I walk lots too. Its slow and gradually longer time and distance so I burn calories well.
Good luck on the figuring it all out.
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