Diagnosis help

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New Member

Date Joined Mar 2009
Total Posts : 10
   Posted 3/18/2009 10:08 AM (GMT -7)   
I am a 28yr old female and have been being treated for Crohn's since 2006 and experience regular constipation, stabbing abdominal pains, bloating, cramping, rectal bleeding, sore muscles and joints, tiredness, moodiness, irritability and over the past 6 months or more chest pains and trouble breathing which I associated to my work transfer and move to a new town.

I have had stomach and digestive problems since I was a child and I began having more abdominal pain and problems more regularly once I was over 18 which I attributed to higher stress and anxiety. I actually ended up in an emergency room at one point with a misdiagnosis of appendix rupturing which the surgeon quickly said was wrong and treated me for a stomach infection. The treatment did nothing more than a placebo effect as far I can can tell. I have been admitted twice to the hospital with all steroid shots and antibiotics, liquid diet, etc when I have "flair ups" and have done a number of tests, barium swallow, colonoscopy, xray, etc. without any exact diagnosis as I was usually in remission when the test were performed, darn waiting lists. The closest we got was an xray taken during a flair up that showed swollen tissue of my abdomen. My doctors have been treating me for crohn's and IBS based on my symptoms being inconclusive for one or the other on its own, mostly because of the C instead of D. Early on I was given Pentasa which hurt my stomach and then Sulfa which eventually hurt my stomach and did nothing to control flare ups. I then went off of all meds and have been trying to control with diet and lifestyle. Still not having much success. I have also been being told of H. pylori which I know very little about.

Sorry for being so long winded, just a little frustrated, worried, and confused. Can someone tell me if crohn's is normally this difficult to diagnose or if my symptoms seem way off base?

Veteran Member

Date Joined Jan 2006
Total Posts : 768
   Posted 3/18/2009 10:59 AM (GMT -7)   
I know nothing but my own experience but you named all my symtoms. I didn't get D until much later in sickness. Don't give up. I heard one person had to go to 5 Dr. before they got it figured out. I spiraled down for 5 years straight with nothing working medication wise (except the dreaded Preg.) and finally got a little better with focused mental, physical and spiritual work. Who knows what happens next but Spring is coming and there are flowers coming with it.

Hope you get a break. Constant pain is so hard. My heart goes out for your suffering.

New Member

Date Joined Mar 2009
Total Posts : 10
   Posted 3/18/2009 12:21 PM (GMT -7)   
Thanks Tri, feels better to know that I'm not on the wrong track!

Forum Moderator

Date Joined Nov 2003
Total Posts : 7119
   Posted 3/18/2009 3:52 PM (GMT -7)   
Many here have experienced the diagnosis roller coaster, myself included. I presented with Crohn's symptoms numerous times yearly for over 15 years. i finally stopped even telling the doctors and just suffered through the flares. After 10 years of trying to ignore "the beast" I had a severe flare that I could not ignore. I was finally diagnosed after 25 years.

Have they done a capsule endoscopy? This is the camera pill that photographs the small bowel. Most of the small bowel cannot be seen with either an upper endoscopy or colonoscopy. Crohn's can be confined to the small bowel making it tough to get a diagnosis. Also, we have quite a few Crohn's members who present with constipation rather than diarrhea. Your doctors are a bit behind in their understanding of Crohn's if they think constipation cannot be a symptom of Crohn's.

BTW, welcome to Healing Well!
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.

New Member

Date Joined Mar 2009
Total Posts : 10
   Posted 3/18/2009 4:21 PM (GMT -7)   
Thanks for the welcome. I was reading through other posts and realize that I have been misinformed about C not being a common symptom. I am starting fresh right now with a new doctor and a new town so hopefully things will go along more smoothly. In regards to the capsule endoscopy, that would have been my next test but the waiting list was ridiculously long just to get the colonoscopy performed and I was canceled on twice over a period of a year. Between my work and the doc being 4 hours away, things just never worked out and my reg doc never pushed for anymore tests. I've been very unclear about what to pursue and what to ignore with it being still a very new disease to me even after 3 years. I tend to feel like a burden when I bring symptoms and problems up again and again to doctors without any further advice.

Thanks again for the advice, I see my new doc tomorrow so hopefully we can start fresh! I will keep in touch, this forum has been more helpful than anything I've read in the past. Thanks so much!
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