Jatika, your GI is a disgrace to her profession, the best she can be described as is tactless, rude and unable to fulfill even the most basic of communication needs. If you know any official complaints body that regulates that sorry excuse for a doctor, I strongly urge you to contact them. Not only will you feel empowered as you mail the envelope, but you will have the satisfaction of knowing that it will perhaps save others in your situation from having to endure the same torment.
is just not good enough, totally not acceptable.
I know exactly what you mean about
not wanting the stress of more tests that show nothing. I am in the same shoes. Typically, by the time I get a scope, which involves my GP doing blood tests that show nothing, then a wait of weeks or months to see a GI, then the scope, then a wait for an appointment for results....my gut has settled down again ! And even when it hasn't, the scopes and tests still don't show anything. It is utterly demoralising.
But your symptoms are considerably worse than mine, and you have a child to consider. It may be that her behaviour
is imitation, or it may be something entirely physical ( a fact which sadly many doctors may find unlikely, although it is all too possible), but in either case, you need to sort this out for her sake.
If your colonoscopies and SBFT were only partial and could not be completed or seen clearly, that's rather like a doctor peering through a very dirty window to see what is within; it is certainly not possible to exclude diagnoses using procedures that do not work. I would hazard a guess that you have a "shake'n'bake" gastroenterologist who didn't know how to do these procedures properly (you may be lucky not to have a punctured bowel), and you would do a lot better from another go. And yes, there is an area of the gut that the scopes cannot get to, and that is why the pill cam is often used, with great success. Given your constipation, I wonder if you might have strictures in that area. That would make a pill cam not such a good idea.
As far as diarrhoea without pain is concerned, I get that quite often; I don't know how common that is amongst Crohnies, I seem to be pretty unusual in many respects. It seems to depend on what I have been eating, the blander the food the better. The more "wrong" my diet is, the worse it feels for me as it says goodbye to me. Dietwise, I found that although I felt an immediate improvement upon going onto an organic gluten and dairy free diet, it did take a long long time - months - before I started to really have a more settled gut. It seems to me that once your gut is damaged, it is pretty hard to get back to a sound nutritional/digestive status.
I'd suggest you start on some probiotics of the sort that are supposed to improve gastric transit time and dampen inflammation; it can do no harm, and may well make a big improvement to your bloating, if nothing else. How ironic that something that is not even considered a medicine is so much more likely to do good than anything your doctor prescribes !