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Veteran Member

Date Joined Jun 2005
Total Posts : 981
   Posted 3/20/2009 3:56 PM (GMT -7)   
Hi all,
Just thought I would share with you how im going with my new ileostomy. I am feeling incredibly well its an amazing feeling for the first time in I dont know how long yeah . Although I have had a couple of hiccups with the bag staying put but a trip to see the ostomy nurse has sorted that out and thankfully it wasnt through any fault of my own, it was simply that my ostomy had changed in size. Since my surgery I have dropped all my pred weight and no more grey face or dark rings around my eyes or pain wrinkles on my face. I cant begin to tell you all how happy I am right now. But still freaks me out looking at my tummy and get the shakes and sweats up. Im sure that will pass in time. Hope you are all doing well. Take care :-)

Rider Fan
Veteran Member

Date Joined May 2008
Total Posts : 1445
   Posted 3/20/2009 4:03 PM (GMT -7)   
32 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira. 22.5mg prednisone. Udo's Choice Probiotics (30 billion).

Tried SCD, didn't work, now avoiding gluten and dairy.

Veteran Member

Date Joined May 2007
Total Posts : 1220
   Posted 3/20/2009 5:10 PM (GMT -7)   
That is wonderful!! Good for you!!
Diagnosed with rectal Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.

Veteran Member

Date Joined Dec 2008
Total Posts : 947
   Posted 3/20/2009 5:24 PM (GMT -7)   
Congrats! I'm glad your feeling good.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Folic Acid, Multivitamin, Dbl. Calcium, Probiotics, Protonix, Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 3/20/2009 5:34 PM (GMT -7)   
I am so happy that you are finally feeling better. You had a tough road there for awhile. I hear the ostomy's take awhile to adjust to, but once you do, all is good. Congrats!!!

Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Mar 2006
Total Posts : 1354
   Posted 3/20/2009 8:17 PM (GMT -7)   
This is great news Andorable - what a brave woman you are!
Hope you stay this well forever :)

Veteran Member

Date Joined Jun 2005
Total Posts : 981
   Posted 3/20/2009 11:37 PM (GMT -7)   
Well look at that I realised after i posted its called a stoma lol . Im getting used to all the correct wording for all this too. Thanks guys:-)

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 3/21/2009 1:09 AM (GMT -7)   
I am glad your feeling better.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
Also diagnosed with Osteoarthritis and Rheumatoid Arthritis

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 3/21/2009 10:13 AM (GMT -7)   
Glad to hear you feeling better :) I love that kind of news.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics given to me by my GI.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."

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