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Regular Member

Date Joined Aug 2008
Total Posts : 190
   Posted 3/23/2009 5:01 PM (GMT -7)   
I almost posted this in another thread, but didn't exactly fit the topics but..

I started Dicyclomine (generic for Bentyl?) 30 days ago and has helped immensely! The cramps have significantly decreased as well as the sudden urgencies where I must be on the toilet within 60 seconds (or else). I could always tell if I was going to have one of those days because I could feel it in my back (ie. aching pain & weird pulsating sensations in unwanted areas).

I feel almost as good as when I was on prednisone with the exception of 1 or 2 days a week, but better than 4 or 5 bad days. I saw posts were it made some people loopy or blurred vision, but after the first few days I either don't notice them or they aren't as bad.

Regular Member

Date Joined Mar 2005
Total Posts : 357
   Posted 3/23/2009 6:26 PM (GMT -7)   
I take it on occasion, but it does make me loopy and I'm not much good for anything (usually) after I take them... plus they don't mix with Percoset, so it's one or the other; and strangely enough, I can still function on Percoset. It does work wonderfully though... glad you found something that helps!
32 year old female... diagnosed with Crohn's/Colitis at age 16, then with Proctitis in 2005... right hemi-coloctomy April 2001 (removed 12 inches)... currently taking 100mg 6MP, Canasa, acidolpholus, Protonix, B12 injections once a month, tapering dose of 40mg Prednisone, Bentil and Percoset as needed... considering Remicade

Regular Member

Date Joined Sep 2007
Total Posts : 182
   Posted 3/23/2009 6:45 PM (GMT -7)   
I have never tried bentyl but have always wondered what the difference between say that and percocet is? I take percocet for pain. However, it doesn't really do much. It relaxes me a little and I guess that sort of helps take off the edge. I would love some feedback, Thanks so much. LOVEPINK!
I have had Crohn's since I was 21 years old and I am now 28!!
Unfortunately, nothing has worked for me. But I will keep on going and trying everything possible!

Regular Member

Date Joined Aug 2008
Total Posts : 190
   Posted 3/23/2009 7:29 PM (GMT -7)   
Hmm.. haven't taken percocet before, but it looks like a pain reliever. From what I understand, bentyl is an intestinal muscle relaxer. I take it approx. 30 minutes before meals and when I go to bed. The first time I took it, it was really hard to eat my food because my eyes would not focus on it. But after the first few times, I haven't noticed the side effects as much. It is a huge relief on my hemorrhoids though, I can't explain the amount of pain I had due to the urgency of needing to go.

Texan with Crohn's
Regular Member

Date Joined Dec 2007
Total Posts : 362
   Posted 3/24/2009 3:57 AM (GMT -7)   
I take this before I eat my evening meal. It does cause some vision issues, which is why I take only when at home. It does help with digestion of food, like my PCP said it would.

Single mother of a wonderful daughter, care-giver to disabled sister and aging grandmother. Diagnosed with CD during second hospital stint in Jan of '07(??)
Tried: Asacol, Pentasa, Immurane, Entcort
Currently Taking: Prenisone (intermittently), Phenegren, Hydrocodone, Benetyl, Anti-panic medication, B12, acidolophilus, omga3 and multi-vitimin

Regular Member

Date Joined Aug 2008
Total Posts : 190
   Posted 5/1/2009 8:40 PM (GMT -7)   
Ugh...... maybe the dicyclomine was a coincidence or my body built up an immunity to it. Since Monday of this week I have been doing the bathroom run 4-5 times within a 2 hour period. Dr. had me get some blood tests and they say everything is normal so they aren't too concerned. Sometimes I think blood tests are a bunch of bull.

Take A Pill & Be Judged
New Member

Date Joined Sep 2013
Total Posts : 1
   Posted 9/24/2013 9:46 PM (GMT -7)   
I'm almost 17 and the doctors have gave me dicyclomine. I have to take it with every meal and at bed time. They say they don't know what I have. I'm already lactose intolerant, but my HORRIBLE and frequent stomach cramps and diarrhea seem to be getting worst. I don't know how to talk to my doctor about checking for crohn's disease, but i feel as though everyone looks down at me when i have to take a pill in a restaurant or at school. Even when the pill doesn't always work.

Veteran Member

Date Joined Oct 2006
Total Posts : 2082
   Posted 9/25/2013 7:44 PM (GMT -7)   
I've used this and other antispasmodics over the years, but I haven't in a long time. I remember my GI telling me that after about two weeks of continuous use, the body gets used to it and it doesn't do much. So when I was on it I had to use it sparingly, a few times a week, for it to work.
54 yr. old. Ileocolitis since early teens. Hemicolectomy-left side in 2001. Severe chronic pain due to spinal chord injury, rotator cuff injuries, enteropathic arthritis. History of endometriosis. Depression.
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