Kaycie - I just wanted to say I'm sending good thoughts. I really hope Tysabri brings you relief. Like you I figure that an ostomy is in my future at some point but I am not ready. I keep hoping that Prochymal will be approved and help so many of us who have failed all other meds. Hang in there... hugs!
--40 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine --rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08 => STOPPED 10/3/08 - now 2 months into it & it was the right decision
--currently taking budesonide suppositories, 3mg at night. SLIPPING big time. Started Cimzia first dose 2/10/09. Dx Osteoporosis 10/08 started Forteo 1/27/09
--single mom to 11-yr-old girl