Entocort --- is this normal?

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Regular Member

Date Joined Jan 2009
Total Posts : 23
   Posted 3/26/2009 2:21 PM (GMT -7)   
Hello all! I have posted on the site before when I was discussing Remicade then Humira....both meds did nothing except keep my Crohn's a flarin' in addition to leaving me with some annoying side effects. Now the docs thought it was a good idea that I try Entocort again...and it has been working for a little while...I am anemic again and have been getting a l of sleep but this morning I awoke with a pounding headache, some cheast pain, severe leg and body aches and shooting pain in my stomach and lower back. Needless to say I couldn't drag myself to work and here I am. I am wondering is this normal --- do I need the hospital or should I try to man it out in bed?

Thanks a lot guys.
Melissa -- New York City
Diagnosed with Crohn's in 2005

Veteran Member

Date Joined Dec 2005
Total Posts : 637
   Posted 3/26/2009 2:42 PM (GMT -7)   
Sorry you are not feeling well.

Trust your instincts, and head to ER, or call ambulance, if your body tells you to.

I hope you get on some iron supplements soon, being anemic is so horrible, and it could be responsible for "a pounding headache, some cheast pain, severe leg and body aches and shooting pain in my stomach and lower back"

Take Care
CD dx @ 13 (1987)
Prednisone 8mg every other day
Imuran 100mg day -- Stoppped March 09
Celexa 20mg day
Pain Meds -- Morphine Sulfate
Vitamins + B12 Injections Once Per Week
Gallbladder Resection -- 3/19/09 -- Fingers crossed

Regular Member

Date Joined Feb 2009
Total Posts : 139
   Posted 3/26/2009 2:50 PM (GMT -7)   
I would go to the ER....you don't want to take any chances with chest pain...I hope you feel better soon....debbie

Veteran Member

Date Joined Jan 2009
Total Posts : 832
   Posted 3/26/2009 4:36 PM (GMT -7)   
I am feeling just like you :S

I am on 9 mg of entecort , Asacol and Remicade.

I have been sleeping all day for the past seven days, but i just had 5 iron infusions so i don't know what is going on. I have really bad headaches and heartburn despite taking Nexium.

I am seeing my doc Tuesday hopefully he can fix me hehe..
I hate beaging this tired all the time i get do anything except sleep and then sleep some more.
24 year old female
Diagonsed with Crohns disease in December 2008..
Medication - Asacol, Remicade, Entocort

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