I'm starting Remicade on Tuesday!!!!

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Regular Member

Date Joined Aug 2004
Total Posts : 334
   Posted 3/28/2009 11:13 PM (GMT -7)   
I just wanted to share my great news with you guys. I live in Canada, and a patient advocate for Remicade got the government to pay for my Remicade treatments!!! So I'm starting on Tuesday. I'm soooo excited! I've had crohn's for about ten years, some really rough patches, but no surgeries yet, thank goodness. Just last year I was diagnosed with ankylosing spondylitis, after years of back issues and pain. My Rheumy was the one to push for Remicade for the anky spond, and my gastro doc also backed his decision of wanting me on the drug. It's only taken a few months, and piles of paperwork that the patient advocate took care of, and I am going to get my Remicade!! I can't tell you just how thrilled I am. Especially if this ends up helping both conditions! I am sooooo ready to feel normal again.......I kinda forget what that feels like!

Cathy smilewinkgrin

Elite Member

Date Joined Jan 2005
Total Posts : 24909
   Posted 3/29/2009 8:25 AM (GMT -7)   
I am so happy for you
I also hail from the Canuck side.....Ontario
Our Gov is fairly good at helping out with different things smilewinkgrin
I am so glad you got the Remi paid for
I am also so proud of you being an advocate for this TX .........

PLZ do let me ( us ) know how things go
I am so excited for you


 DX: Crohns,Pyoderma Gangrenosum,Anxiety/Panic,
Fibro & Other DD

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Veteran Member

Date Joined Oct 2005
Total Posts : 1250
   Posted 3/29/2009 9:46 AM (GMT -7)   
Cathy, the best of luck to you!!! Blessings, Julie:-)
Diagnosed with Crohn's March 2006, Fibromyalgia Nov. 2008, Anxiety Disorder since childhood
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 10 mg, Miralax,  Prevacid 30mg, Vit B12, Vitamin D, Slow-FE (Iron), Hydrocortisone enemas
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg three times a day, 1mg at bedtime (for anxiety attacks)

Veteran Member

Date Joined Apr 2005
Total Posts : 2346
   Posted 3/29/2009 5:54 PM (GMT -7)   
Good luck! I go on Fri. for mine!

Regular Member

Date Joined Aug 2004
Total Posts : 334
   Posted 4/2/2009 4:31 AM (GMT -7)   
Well, Tuesday went well. My first Remicade infusion. I was at the infusion clinic from 1:30 till about 5:15pm. Made for a very long day. My only complaint leaving the infusion, was I had a bit of an headache, and felt tired. All in all, a good experience....I was terrified that I would immediately have some sort of violent reaction, but thankfully that didn't happen.
I was in bed that night by 9, and slept straight through till morning. When I woke up yesterday morning, I felt as though I had the flu, shivering, going between hot and cold, not hungry at all, couldn't even finish a cup of tea. My head was pounding and I felt really pukey. It also seemed to awaken the crohn's beast, with numerous trips to the bathroom, for some very watery stool. I kind of wondered just what I got myself into!
I did manage to eat around supper time. As the night wore on, I felt better and better. Had a good night's sleep, and here I am this morning. I feel fine! The flu like stuff is gone!! Yay!!!!
For anyone else that is on Remicade, or has been on it.....is the flu-ish feeling, and feeling REALLY tired, a normal experience for you?!? I'm so willing to put up with a few days of discomfort, if it means a reversal of most of my pain and symptoms from both crohns and ankylosing spondylitis!
Overall, I would have to say, that this has been a positive experience. Two more weeks till my next infusion!

ps...they gave me the prescription receipt for the infusion, and the cost of just that infusion was almost 5000.00!!! Thank God it's covered!!!!
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