Thanks for your words, ideas, and support. Yesterday was my last day at school for 9 days (spring break-yeah)!! I can now take time to rest and hopefully heal easier. I'm still going to the IV center everymorning for steroids, but no more antibiotics. The cellulitis is better and Monday we'll revisit our third try at going on oral steroids and the wean down plan. I also made an appt. with a dermatologist that my GI wants me to see. I didn't tell my inf. dr, but I just want as many inputs from people who can help as possible. I go Tues. to see her and am glad it's another female. The pain is still the worst part, but the burning is getting better. She has me using a Lidocane cream for bad episodes and then the Silvadene antibiotic cream stays on it otherwise. She has decreased my pain med to 20 Lortab 7.5 from 30 Lortab 10, because of worried about addiction. That's one of the things I am scared about, is dr's fears versus our true needs. If she quits giving me pain med, I don't know what I'll do!! This PG is so incredibly indescribable. I've lived for 16 years with Crohn's belly pain and learned to live with alot of it, and rarely use pain meds, but this PG it's not possible!! I'm down to 80 mg Solumedrol twice a day, so I am getting a little more sleep, and with spring break here hope to do some much neede catching up! Thanks again for your support.
love to all,
diagnosed CD '03 after suffering for 10 yrs.
re-section surgery '05, Chronic Pancreas problems, joint and muscle issues (from Remicade), diagnosed March '09 pyoderma gangrenosum
meds been on-Asacol, Pentasa, Lialda, Remicade, Humira, 6-MP, Methotrexate, Rowasa, Prednisone, too many pain meds to list
Currently on-Cimzia, Cymbalta, Reglan, Pamine Forte, Methotrexate, Folic Acid, Probiotics, Phenergan, Omeperazole, and Klonopin(RLS) (IV Vancomycin, Fortaz, Solumedrol, and Lasix)