Who on THIS board has an Ostomy?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Jan 2006
Total Posts : 449
   Posted 4/1/2009 5:39 AM (GMT -7)   
Just wanting to see who on THIS board has one. I've already visited the ostomy site and found them helpful, but was just curious who all had them as I'm pretty sure I'm going to have a million questions to ask!

Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Remicade, Failed Clinical Trial ABT-874/Aisle 12, Failed Humira. Onto Tsyabri. If I fail that, total colectomy.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 20 months old

Regular Member

Date Joined Aug 2008
Total Posts : 305
   Posted 4/1/2009 5:47 AM (GMT -7)   
Ive had mine for over 15 years. Ask anything you want. Tony
Crohns 30 years. Ileostomy for 15 years. Symptom free for 14 years until 8 months ago. Now on Remicade, Flagyl, B-12 injections and iron. Feeling much better!
God Bless. Tony

Regular Member

Date Joined Mar 2009
Total Posts : 24
   Posted 4/1/2009 6:08 AM (GMT -7)   

Depends which ostomy you need??


I've had a colosotmy for 2 years now, and would much rather have that than have to pass a stool through the rectum, I have perianal crohns with abcessed and fistula. My sphinca is almost completely destroyed from surgery.

Veteran Member

Date Joined Jan 2006
Total Posts : 768
   Posted 4/1/2009 11:30 AM (GMT -7)   
My Dr. wants me to get one but I am not doing it now. I am feeling so much better that I don't want to rock the boat. They seem a little too knife happy to me.

Regular Member

Date Joined Feb 2009
Total Posts : 33
   Posted 4/1/2009 2:08 PM (GMT -7)   
I have a colostomy. I have had it for nearly 7 years and had the opertion when I was 17 so feel free to ask any questions as I have had to live with it whilst going to university etc.

Hope I can help
24 year old male from London
Crohns since 2002, Colostomy in 2002 and Small Bowel Resection 2005
Have tried Infliximab (Remicade) and Adalimumab (Humira)
Numerous spells on Prednisolone 40mg, Suspected Abscess in June 2007 - treated with antibiotics
Flare up in Feb 09 resulted in 2 week hospital stay
Now out and on Modulen - no food for ideally 8 weeks ARGH!!!!!
Also on Azathioprine 125mg

Veteran Member

Date Joined Jun 2005
Total Posts : 981
   Posted 4/1/2009 8:39 PM (GMT -7)   
Hi I have an ileostomy just had it done on march the 4th and I must say I feel the best I have felt in years. Ask me anything u like too, only to happy to help out.
take care

Veteran Member

Date Joined Dec 2005
Total Posts : 637
   Posted 4/2/2009 4:44 PM (GMT -7)   
I am curious about this too, been thinking alot lately about it.

The question I want to ask is;

What do you do in say walmart, or a large store, where people are all around. Does anyone bump into you, do you guard the area well, or is this no problem if they do bump into the ostomy?

CD dx @ 13 (1987)
Prednisone 10mg every other day
Celexa 20mg day
Pain Meds --

Veteran Member

Date Joined Jun 2005
Total Posts : 981
   Posted 4/2/2009 6:24 PM (GMT -7)   
hey homeboy,
At the moment i am very guarded of my ileostomy but only because I only had surgery on march 4th and still a little sore but apart from that once its completely healed I wont be worried at all. I had my grandaughter on my lap the other day cuddling into me and it wasnt a bother at all. Also no one knows I have it unless I tell them, it is very well hidden. take care
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, December 13, 2017 3:57 PM (GMT -7)
There are a total of 2,905,032 posts in 318,821 threads.
View Active Threads

Who's Online
This forum has 158188 registered members. Please welcome our newest member, DoubleChecking.
356 Guest(s), 10 Registered Member(s) are currently online.  Details
gmoose2, LymeSick 🌟, oceanfisher58, yancync, NiceCupOfTea, ByHisGrace, HopeNheal, Imbeccak, irish4me, Bugleboy