I was diagnosed with Crohn's, after colonoscopy, in December 08. I've had minor stomach issues all my life, always attributed to lactose intolerance (which is funny because greasy foods are my main problem...). My huge flare began after a bout of food poisoning from bad bacon at IHOP in July 08. My mom and I both got sick, along with other patrons, but I kept getting sicker. Everything started to clear up, until September, when I was put on a heinous regimen of antibiotics by a doctor who said "your white cell count is high- probably a bladder infection, but who knows."
Honestly. "Who knows."
I lost 35 pounds between September and late November, when I finally got to my wit's end and called to ask if I'd been tested for hepatitis, after my stools turned orange. This put the office into overdrive, thinking I'd lied to them all along, and really had hep. (Right, you're the doctors telling me "who knows," and I'm a big dirty liar!) Then, magically, they find that a stool culture they'd done had an elevated white count, and sent me to a GI doctor.
I'm fairly certain that I'm doomed to the worst doctors in history. Other than a diagnosis, my GI doc has done little more than provide me with a regular dose of "this is a death sentence" rather than any hope. In January, I consulted her about a lump in my perianal region, and she really dismissed it as that- just a lump. A week later, I was in a walk in clinic because I could barely sit, let alone sit any longer than to drive myself to the clinic down the road. Now those two doctors are in a pissing match over why it was diagnosed as a cyst, rather than the beginning of a fistula.
Hi, patient here? Can I just get some help? After finally getting to a colorectal surgery consult this morning, they said I needed an emergency fistulotomy tomorrow morning.
Of course, Dr. Bearer-Of-Doom says this means that, aside from my 100% improvement in bowel function, my condition is "gravely worse" and I must begin taking Imuran, in addition to Asacol. But back up- I've had this since just a week after diagnosis, before the Asacol had even begun to help. So... wouldn't the logical deduction be that this was a weakness that's been there all along? That she missed?
UGH I AM SO FRUSTRATED!
On top of that, my boss seems to think that this is magically going to make me "all better." He's one of those types that is never sick, and has never dealt with chronic illness. I expected more from a Walgreens manager...