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Forum Administrator

Date Joined Jan 2003
Total Posts : 9743
   Posted 4/2/2009 8:50 AM (GMT -7) just launched a brand new Facebook page, become a "fan" today and spread the word among your FB friends!
Peter Waite, Founder/Editor - Community, Information, Resources

Post Edited (Admin) : 5/27/2009 4:27:59 PM (GMT-6)

Veteran Member

Date Joined Nov 2005
Total Posts : 1340
   Posted 4/2/2009 12:20 PM (GMT -7)   
Cool, but I am not going to tell who I am on there. :)
Hoping to stay in remission after the birth of a healthy baby girl. On Pentasa during my pregnancy, went med-free 2 months to nurse (stupid), but back on Pentasa and still nursing.

Veteran Member

Date Joined Apr 2005
Total Posts : 2346
   Posted 4/2/2009 1:39 PM (GMT -7)   

Veteran Member

Date Joined Jul 2008
Total Posts : 674
   Posted 4/2/2009 4:19 PM (GMT -7)   
Woo Hoo, I became a fan!

Dianogsed with Crohns: At 16 years old. 22 years old now.
Surgeries:2 Bowel Resections, Gallbladder Removed.
Current Meds: Imuran 50mg, Vitamin B12 (injection), D, and C tablets. Fish Oil Tablets, Cats Claw, Slippery Elm, and Reishi.

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 4/2/2009 10:16 PM (GMT -7)   
AH, I finally remembered my password on here...nice facebook page though! I joined just a little while ago. An actual healingwell group would be neat but maybe superfluous since we have this site..
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics given to me by my GI.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."

Veteran Member

Date Joined Dec 2005
Total Posts : 544
   Posted 4/3/2009 5:55 AM (GMT -7)   

what fun and thoughtful thing to do...thanks


Now we can see what everyone looks that a good thing?

dx IBS 1999   UC 2000   CD 2001
Tested BIOGEN TYSABRI (gave me 2 years of remission)
Naltrexone Jan. 19, 2007 Stopped July 28th...started Humira Aug 31st, 2007.... Also nightly dose of mesalamine.
Surgery Nov 4th, 2008 removed 30 inches of small bowel.
Off Humira March 2009...starting Cimzia  April 2009
 Crohns is currently active and has been since April of 2005
52 yrs old

Regular Member

Date Joined Feb 2009
Total Posts : 128
   Posted 4/12/2009 5:09 PM (GMT -7)   
I don't think it would be superfluous, I'm an internet junky but only just found this. Facebook reaches more people, and last numbers say there are 500,000 of us Crohnies out there.
I am a pre-30yr. old who has been diagnosed with Crohn's for 14 years.  Symptoms change from cramping and weight loss to severe anemia with fatigue and diarrhea. 
I'm DONE (D-O-N-E, DONE!!!) with immuno-suppressants.  Tremble, yee Pharmacuetical companies, for you will not withstand the aggressive onslaught of our healing!
new prescription from natural doc,
3.5 grams Chlorella daily.
4.5 mg Low Dose Naltrexone nightly. 

Regular Member

Date Joined Feb 2005
Total Posts : 455
   Posted 4/24/2009 9:17 PM (GMT -7)   
"real life" friends lool
SCD since 01, remission since 01, occasional Arby's breaks :)

Forum Administrator

Date Joined Jan 2003
Total Posts : 9743
   Posted 5/7/2009 2:38 PM (GMT -7)   
Do you use Twitter? Follow on Twitter at
Peter Waite, Founder/Editor - Community, Information, Resources

Forum Administrator

Date Joined Jan 2003
Total Posts : 9743
   Posted 5/27/2009 3:20 PM (GMT -7)   
I've just launched a link for those who want to follow HealingWell on MySpace at
Peter Waite, Founder/Editor - Community, Information, Resources

New Member

Date Joined Jun 2009
Total Posts : 1
   Posted 6/13/2009 6:30 PM (GMT -7)   
Hello! I'm new to this forum I'm not even sure if I'm "replying" correctly. I am a 25 year old female, and was diagnosed with Crohn's Disease this past February after the birth of my first son. I had to take 40 mg of Prednisone, and was finally able to wean off, and am currently taking 75 mg 6mp and have had 3 Remicade infusions so far. I hate what these drugs are doing to my body, but my doctor says that these are the only treatments at this time, and that I HAVE to get it into remission. I don't like the fact that my immune system is significantly suppressed, and I don't like feeling nauseated and tired all the time. I just wanted to know if anyone is seeing a doctor who has prescribed "natural" remedies for Crohn's Disease, and are they working? I've asked my DR about this, but he says that there are none that would help me. Any advice would be SUPER appreciated!!

New Member

Date Joined Jun 2009
Total Posts : 2
   Posted 6/17/2009 6:14 AM (GMT -7)   
i am also looking for some homeopathic remedies. i have heard that they are close to a cure. my son has crohns and is young so i am trying anything to prevent him from being on all this medication. so frustrating. he is currently taking 50mg of 6mp, pentasa and vitamins. i am spending most of my summer trying to gather information as to what else is available. have you ever heard that germany is experimenting with bacteria from worms.
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