I had my c scopy on monday and visually everything looked good but the gastro did take 14 biopsies so I am awaiting the results. Have you had c-scopes that looked good initially but showed issues on the biopsies? I am more than a little frustrated as I am back on the prednisone and still having to infuse nightly thru my PICC line to avoid dehydration. I am trying desperately to get in with a new gastro. When I told my current one about my food coming out whole in my stool, his response was "huh.. thats kinda weird.. " .. not very comforting.. if it wasnt for this board I would have lost my mind already. He also thought it was time to pull the PICC and get me off the pred- an immediate taper of 5 mg a week.. i basically refused... i am just barely stable and not even that.. still having pain and nightly diarrhea to the point of dehyration but he thinks that since i am not going 5x a day, I need to taper. If I could get to the point where I am not dragging an IV pole around nightly then I would taper but I am so afraid that I will deteriorate again.
thanks for listening.
40 year old female- Diagnosed with Crohns in 2000. Currently on Colazaal 950 mg, prevacid 30 mg, prednisone. Also diagnosed with ibs.