At my wits end...

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New Member

Date Joined Apr 2009
Total Posts : 1
   Posted 4/3/2009 8:29 AM (GMT -7)   
Back in November I was having some slight pain next to my rectum.  It got worse over the next few days.  I finally broke down and went to the doctor.  Diagonised with a peri-anal abcsess.  Saw a colo-rectal surgeon the same day.  I had a I&D the next day.  Before surgery he couldn't say if it was just an abcess or if there was a fistula.  Of course, there was a fistula.  I came out of surgery with a large drainage tube and a seton.  The drainage tube stayed in for a week. 
After many trips back and forth to the CR doc and draining a lot of pus,  I was finally schedule for a fistula plug placement in Janurary.  Needless to say,  the CR doc finally told me this week what I already knew, the plug failed.  At the time of the plug placement I had a colonscopy done to check for Crohn's.  It was negative.  However now my CR doc seems to think that I do have Crohn's.  I am still having a fair amount of pain from my fistula opening.  Also a fair amount of drainage.  Before this last appt this week I was on a two week course of Flagyl, which did nothing.  I just don't know what to do anymore.  I'm tried of dealing with all of this.  I've thought I had some sort of inflamm. bowel disease for years now.  Is it possible to just have crohn's in the rectum?  That's what the doc is thinking that I have.  Now he started me on Predinsone 30mg every day.  I'm scared about taking that medication, but am willing to do anything that will help.
Has anyone else been in a simliar situation?  How did you get through it?  Did it eventually end?  Any help and words of wisdom would be appricated it.  I'm new to the forum, because well I can't find anyone else in my life that really gets it. 

Veteran Member

Date Joined May 2007
Total Posts : 1220
   Posted 4/3/2009 9:52 AM (GMT -7)   
We get it Rnmel428!

Welcome to the Forum! I only have Crohn's Disease (CD) in the rectum, and have had three absceses and one fistula that branched so I have two setons. I was disgnosed when they biopsied the area around the fistula and found granuloumos tissue. That means CD. Did they take biospies for you?? Having an abscess and fistula does automatically mean CD. Many people get them and most don't have CD. Here is a good article I found on abscesses:

Unfortunately, the plug doesn't have a very good success rate, and it is only 40 - 50% successful in CD people. From what you wrote, it sounded like the abscess wasn't healed before they did the plug procedure in the fistula. My colo-rectal surgeon says it all has to be healed before he would try any procedure. The tissue has to be healthy or it won't grow into the plug. What did you doctor say was the next course of treatment?

The abscess has to be treated properly in order to get rid of it. I don't know how deep yours is or how complicated -- and of course I am not a doctor. Mine have been such that my colo-rectal surgeon cut the abscess open, scraped it out, and let it heal from the inside outside. He says this is the most successful was to treat abscessess in CD people and from reading the experiences of those who post on this Forum, I agree with him. Bacteria can travel up the drain and go to town in the abscess. I am not saying drains don't work at all, but that the treatment depends on the locationa nd size of the abscess.

I was not put on Pred, but I was on Levaquin and Flaygl for months. Abscesses are just swimming in nasty bacteria and yeasts. Being on antibiotics will help keep the surrounding tissue from serious infection, but they will do nothing about the abscess. It is a walled-off pocket of pus and the antibiotics can't get in. Ick!

I strongly suggest you get a second opinion. Colo-rectal surgeons vary in their expertise, and finding one with experience in CD would be best even if you don't have it. Just read the other post today from Pheobe and see the differnece a good doctor can make. A second opinion will let you know if your Doc is on the best path or whether you need to switch. Just don't delay. Believe me, the longer you wait the nasty these things can get. Once it is properly treated, you may never get another one if you don't have CD or you do have it!

Hope this helps. Also search previous post on these subjects by using the "Search Site" bar at the top middle of the page.

Take care, and let us know how it goes.
Diagnosed with rectal Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.

New Member

Date Joined Jan 2009
Total Posts : 12
   Posted 8/28/2009 5:43 PM (GMT -7)   
Im finding it difficult to stay sane at the moment. I ups and downs of this fistula and my bipolar are making me not cope. I am trying to finish my diploma and look after the kids. I find it hard to focus on life when I spend so much time in the bathroom. I feel lonely and sad. I don't want to get up anymore. I am miserable. I will get up, I will do some of my art, I will go shopping for dinner and I will clean up the kitchen. I will resist sitting on the bathroom floor and looking, looking, for answers. I will book to see the surgeon on Monday and I will stay on this site from now on and look for support. I have to get support, I tried doing it on my own. Kept thinking I would be different from everyone else. But I'm not. I am travelling the same hell road as the rest of you. I went to yoga on Friday. Thought my scar and plug had succeeded only to come home and see more discharge. Whats it all mean. I don't know. I want to be positive but depression is beating me down. I have to keep moving forward. Lying in bed is rediculous. I have to get strength. They say I don't have Chron's but honestly, I'm not sure if they are correct. My tummy hurts a lot these days and, well my bum always hurts. Sometimes I want to scream at my surgeon, I want him to say more. Speak more, tell me whats going on...I want him to fix me. I am in a negative state of mind. Like a child, I regress because I am frustrated, lonely and feel dirty even when I shower all the time. I am going insane. Thanks for listening. B

Regular Member

Date Joined Jul 2009
Total Posts : 342
   Posted 8/28/2009 8:22 PM (GMT -7)   
Its so hard to deal with..i think especially when you are a female...and you are supposed to feel a certain way..and you don't because you have something..that you feel ashamed as if you did something wrong to cause yourself to get this fistula..well its not your fault....and if you feel frustrated or crying..i just have to say join the club..because i totally understand..its the anxiety of the situation..but its just got to get better on one way or even though you feel depressed..just remember their are so many people going through your situation..and you have options..and its your decision..what you decide to do...and one thing so not let..your surgeon..put the fear in your heart..of an abscess..because ..that is what makes you feel this are fearing an abscess fearing have to take a step back and just breathe..its really going to be okay..and thing truly get better in time..they really do..getting your mind of probally the best thing you can do
yes you can have Crohns in the rectum..its peri-anal disease
yes..prednisone does work..its don't take it forever...sure it has a few side effects..but its a miracle drug..that gets rid of!
You are not alone...Flagyl really never helped me either..their are alot of theorys...about crohns...some feel that antibiotics work, some think suppress the immune system, some are even saying that we need to help our immune system to be stronger..some say that probiotic infusions may be offered in the future...every GI has their opinion...
I promise you this..i learned when my hubby was in Iraq...everything gets better in time.. believe me

 crohns/colitis/lupus/hyperthyroidism-seton fistula pentasa prednisone cipro flagyl vicodin Ultra

waiting on Remicade

New Member

Date Joined Jan 2009
Total Posts : 12
   Posted 8/28/2009 9:28 PM (GMT -7)   
turn  I am not alone anymore and I had my cry last night. I will pick myself up again and deal with it one day at a time. THanks so much. Its such a nasty ****** of a thing. Who would have thought really. I mean I've had brain surgery for goodness sakes and this is harder! I have bipolar disorder and this is harder. This is just ongoing with no answers and thats the hardest thing I believe. Plus others not understanding or knowing what its like. I will keep checking in. Don't want to let go now I've found support. Billy rolleyes
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