How many of us were diagnosed with crohn's / colitis in childhood

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Veteran Member

Date Joined Mar 2009
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   Posted 4/6/2009 11:08 AM (GMT -7)   
confused  Hi everyone, have seen the post further down of people who were diagnosed in their thirties just out of interest who was diagnosed in childhood. I became ill when I was 12 and finally got diagnosed at 13 with crohns.

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Date Joined Apr 2005
Total Posts : 14995
   Posted 4/6/2009 12:31 PM (GMT -7)   
I was 18 when I was diagnosed. The most common age to be diagnosed is to my understanding 15-25 years old.
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

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Date Joined Apr 2004
Total Posts : 2284
   Posted 4/6/2009 2:06 PM (GMT -7)   
I started with symptoms at 5 and had the diagnosis at 12.
We can respond to irritation with a smile instead of scowl, or by giving warm praise instead of icy indifference. By our being understanding instead of abrupt, others, in turn, may decide to hold on a little longer rather than to give way. Love, patience, and meekness can be just as contagious as rudeness and crudeness.
Please allow HealingWell to continue helping others by donating:
Dx'd with Crohn's at age 12. Symptoms since age 5, RLS, Depression, Anxiety, and down right feel yucky some days.
Learning to live with this Disease rather than be its victim after 36 years.

Veteran Member

Date Joined Apr 2005
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   Posted 4/6/2009 2:44 PM (GMT -7)   
I self diagnosed at 13. My Mom had CD so I knew what I was looking at, but it took another 10 years to get an official diagnosis.

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Regular Member

Date Joined Mar 2009
Total Posts : 50
   Posted 4/6/2009 5:45 PM (GMT -7)   
I was diagnosed at 16, but had issues since I was about 10. It started out as irritable bowel syndrome.

Regular Member

Date Joined Mar 2005
Total Posts : 357
   Posted 4/6/2009 5:48 PM (GMT -7)   
I was diagnosed at 16.. everyone thought I was anorexic and told me to eat.. or that my abdominal pain was "just gas" and no one would believe me that SOMETHING WAS WRONG... finally someone got the idea to take my non-eating, vomiting self seriously and I was given an upper gi and was immediately diagnosed... and you know what I said? "TOLD YOU SO!"
32 year old female... diagnosed with Crohn's at age 16, then with proctitis in 2005... right hemi-coloctomy April 2001 (removed 12 inches)... currently taking 100mg 6MP, Canasa, acidolpholus, Protonix, B12 injections once a month, 20mg Prednisone, Bentyl and Percoset as needed... just started Remicade

Veteran Member

Date Joined Jan 2009
Total Posts : 832
   Posted 4/6/2009 5:57 PM (GMT -7)   
I was finally DX at 24 but have been sick for many years, with D and joint pains and so on.
when i was 22 i starting loosing lots of weight and having constant D thats when the docs showed some interest.

But all my life i have never been able to gain any weight unlike me family hehe..
24 year old female
Diagonsed with Crohns disease in December 2008..
Medication - Asacol, Remicade, Entocort

Regular Member

Date Joined Feb 2009
Total Posts : 57
   Posted 4/6/2009 6:05 PM (GMT -7)   
I was probably sick by the time I was 12, and then I was diagnosed when I was 14. Heh, I was in Jr. High at the time, and I will never forget the time when Mr. Powers called me down to his office to discuss eating disorders, what an argument that was! I can't blame them too much though, I think I was 50 lbs underweight after all... Everyone thought my pain was just growing pains... I wish.
22 y/o Male; Dx Crohn's Disease in 2001 at age 14.
Lost 3 inches of colon and 7 inches of ileum in 2004 bowel resection.
CD returns in October 2008.
Current meds: Pentasa: 3000 mg; Fibercon: 2 pills 3x; Imodium: 2 pills 3x
Been on: Prednisone, Imuran, Entocort, Remicade

Veteran Member

Date Joined Jul 2008
Total Posts : 674
   Posted 4/6/2009 7:37 PM (GMT -7)   
I was diagnosed at 16, but I had problems for several years before.

Dianogsed with Crohns: At 16 years old. 22 years old now.
Surgeries:2 Bowel Resections, Gallbladder Removed.
Current Meds: Imuran 50mg, Vitamin B12 (injection), D, and C tablets. Fish Oil Tablets, Cats Claw, Slippery Elm, and Reishi.

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 4/7/2009 12:11 AM (GMT -7)   
I was diagnosed at 16, but had symptoms by the age of 8 or 10.
Co-Moderator Crohn's Forum.

Veteran Member

Date Joined Mar 2005
Total Posts : 1289
   Posted 4/7/2009 9:07 AM (GMT -7)   
i was 15.
35 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently tapering prednisone (15 mgs) and I've been on 6_MP for 2 months.
In the middle of a bad flare now for 6 months...lost almost 30 lbs.

Regular Member

Date Joined Feb 2009
Total Posts : 39
   Posted 4/7/2009 11:04 AM (GMT -7)   
I've had it since I was 13, but that was in 1972 and I lived in a small town. Everyone thought it was all in my head. I wasn't diagnosed until I was around 38 and so sick I went to the emergency room. I had flare ups 2 or 3 times per year, so that's maybe 70 or so without treatment. The funny thing was that within 48 hours of being on pred, I was absolutely amazed that I could poke myself in the belly without it hurting. I thought abdominal tenderness was normal!!

Veteran Member

Date Joined Dec 2005
Total Posts : 637
   Posted 4/7/2009 11:17 AM (GMT -7)   
Dx @ 13 here.

I remember problems back to age 10, but they would go away, so they were not looked into until they became severe to put me at an extremely low weight when I was 13.

Currently 35

CD dx @ 13 (1987)
Prednisone 10mg every other day
Phenergen PRN
Zantac 300 - Twice Day
Pain Meds

Veteran Member

Date Joined Aug 2003
Total Posts : 1017
   Posted 4/7/2009 11:39 AM (GMT -7)   
I was sick at age 6, but was not dignosed till I was over 30.
Red (Lee Ann)
    'Be who you are and say what you feel...
     Because those that matter...don't mind...
     and those that mind...don't matter.'

Veteran Member

Date Joined Mar 2006
Total Posts : 1034
   Posted 4/7/2009 9:03 PM (GMT -7)   
is 17 considered childhood? it was the summer between my junior and senior year of high school, so needless to say my senior year of high school sucked royally.
Crazy Harry

Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07

Regular Member

Date Joined Apr 2009
Total Posts : 85
   Posted 4/8/2009 7:17 AM (GMT -7)   
I started feeling symptoms at age 7 or 8, and I was diagnosed when I was 9.  Junior high and highschool were rough, not to mention leaving school in 4th grade for a stint in the hospital, as thin as a rail, and then going back all bloated and fat.  I was made fun of, and it was hard.
Currently taking: Humira 40mg/every other week, Zoloft 50 mg/day, vitamins and supplements
Have taken: Cyclosporine, Pentasa/Asacol, Aciphex, Imuran, Sulfasalizine, Cipro & Flagyl, Prednisone, various pain med's, Xanax
Surgeries: Appendectomy 2001, Ileocecotomy 2007

Veteran Member

Date Joined Apr 2006
Total Posts : 1885
   Posted 4/8/2009 1:51 PM (GMT -7)   
My daughter's symptoms started at age 16, diagnosis at 18.
Daughter (21) Dx'd Crohn's 3/06. Misdiagnosed for two years, including by top pediatric Crohn's specialist as stress. No symptoms for the past few years. Recent colonoscopy shows stricture gone but still two spots of inflammation in TI. On Entocort since April 06. Never had D. SCD multivitamin, homemade yogurt, 2000IU vitamin D3, 900+ mg calcium, 25 mg iron, occasional B12 shots, fish oil capsules. SCD diet modified to include potatoes and rice. 

Regular Member

Date Joined Mar 2009
Total Posts : 318
   Posted 4/9/2009 8:12 AM (GMT -7)   
crohnielass said...
yeah Hi i was also dignosed when i was 13 years old had it 1 or 2 before but it wasnt something that my hospital every heard about,they put me on nevre pills and told my parents that i was only faking and didnt want to go to school put my mom would hear none of that she took my to a large childrens hospital and found out that day i had crohns and i also had a GI tube put in my belly to feed me for 7 months the only thing i could have was diet 7-up and i was a teen so i wanted junk but i got over that but it took a long time for me to get a proper dignose now it has been 17 long years,my parents were going through a divorce at the same time which i dont think that helped one bite cause your not suppose to be under any stress and that was way to much for a 13 years old kid. Your bowel buddy Jenn tongue

i love this site a friend found it for me.Another one would ccf crohnes and colitis foudataion

Regular Member

Date Joined Dec 2008
Total Posts : 75
   Posted 4/23/2009 1:27 PM (GMT -7)   
I was diagnosed when I was 6. started getting symptoms at 5...I am now 26. Its rare to be diagnosed so early right?
Age: 26 Female
Diagnosed at 6 with Crohn's
Bal-resection at 15
Plenty trials of steriods, anti-biotics, Asacol, Pentasa, Immuran, Remicade.

Admitted for severe flare 12/2008
Avoided surgery once again - 1 ft diseased, narrowed lower intenstine found
treated with high does steriod/antibiotics - currently weaning off Prednisone

started Humira 12/14/08 (and not liking it so far)

started making SCD 24 hr fermented yogurt and have noticed a big difference!

Want to get off Humira and try LDN

Regular Member

Date Joined Apr 2009
Total Posts : 174
   Posted 4/23/2009 1:33 PM (GMT -7)   
I was diagnosed at 16 when I had my parents take my to the doctor because no matter what I did I couldnt gain weight.. Ate a whole lot and excercised and couldnt break 110lbs

Regular Member

Date Joined Mar 2009
Total Posts : 52
   Posted 4/23/2009 6:07 PM (GMT -7)   
I was diagnosed at age 17 and I am 34 now. I remember taking my colonoscopy picture to show my science class.

Regular Member

Date Joined Mar 2009
Total Posts : 318
   Posted 4/23/2009 9:11 PM (GMT -7)   
LauryLu said...
I was diagnosed when I was 6. started getting symptoms at 5...I am now 26. Its rare to be diagnosed so early right?

smilewinkgrin Hi Laurylu i have never heard of anyone that young with crohns disease how did they test you that young with a scope or the barum follow through it must have been so hard on you and your parents at the age,does anyone in your family have it or just you. Good luck LauryLu Your Friend Jenn yeah

Had Crohns 17 years had numerous bowel resections,fistulas,fissures,hemmies,kidney problems,fibro,arthritis,dignosed at 13 had GI feeding tube,nasal feeding tube,cental lines,ports,4 ruptured bowel emergency surgeries,TMJ,depression,current meds are Hydromorphone,30 ,Hydromophome,8 ,Ketoprofen,100 ,Trazadone,50 ,Lorazepam,10 ,Zopliclone,5 ,atriplyine,75 ,Losac,50 Tylenol Athritis ,B-12 injections ,Iron injections ,Gravol,75 Predisone,5mg ,Humira,40mg once a week.Still looking for the doctor with all the answers if you find him forward him to me please.P.S my bathroom is the nicest room in my house cause i spend so much time there,i am thinking about installing the computer and maybe a hot-dog stand.

New Member

Date Joined Apr 2009
Total Posts : 3
   Posted 4/23/2009 9:38 PM (GMT -7)   
I was diagnosed at age 21.Now I am 25.I have taken 5ASA and Immuran for nearly two years.

Veteran Member

Date Joined Mar 2005
Total Posts : 635
   Posted 4/24/2009 11:04 AM (GMT -7)   
I was 16 when diagnosed.  I remember being sick for at least 5 years before.
I tried all kinds of diet adjustments.  Nothing worked.  Finally a upper GI was done and voila!.  Lucky me.
28 years with Crohns in the term ileum.  Feb 07 Resection.  No meds currently..but there will be some I'm sure. Taking acidophilus.

Regular Member

Date Joined Feb 2009
Total Posts : 62
   Posted 4/24/2009 3:11 PM (GMT -7)   
I was 9 or 10 when I started getting sick.  It took about a year for diagnosis.
Crohn's Disease - 29 years
Diagnosed at age 10 in 1979
1st ileosecal resection 1989
2nd colon resection 1993
Chronic "D" and arthritis
Chronic rectal stricture with colonoscopy every 3 months to dialate
Insomnia since 1980 - I love my ambien!
SCUBA diver, Master's degree student, college graduate, Pet therapist

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