Anyone here with a lymphangiectasia?

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Regular Member

Date Joined Feb 2009
Total Posts : 40
   Posted 4/10/2009 12:21 PM (GMT -7)   
I'm recently diagnosed with Crohn's after having symptoms on and off for more than 10 years. In addition to the ulcerations in my terminal ileum, my doctor found a lymphangiectasia in my jejunum during a small capsule endoscopy. Has anyone else had this finding? Apparently it is an obstruction or dilation of the lymphatic vessels. My doctor never mentioned it to me, I just saw it noted in my copy of the report. Is this a common finding, or should I make an appointment with my doctor to speak with him about it?
Just a little freaked out...

Post Edited (AMinNJ) : 4/10/2009 2:27:10 PM (GMT-6)

Veteran Member

Date Joined Oct 2004
Total Posts : 2088
   Posted 4/10/2009 2:45 PM (GMT -7)   
Hi AMinNJ !
From a quick search on a medical dictionary:

"intestinal lymphangiectasia
leakage of protein from dilated lacteals in intestinal villi caused by lymphatic obstruction. May result in a protein-losing enteropathy with hypoproteinemia, diarrhea, edema, ascites and weight loss."
So, it doesn't say how common it is, but basically from what I can make out it is a leaky area in the wrinkles of the gut surface that allows proteins to escape, causing lots of symptoms that we Crohnies all find very familiar. I'm guessing that it is very common and part and parcel of the diarrhoea thing, but don't go believing everything you read on the internet now ! smilewinkgrin
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