Doctors are not humane

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Regular Member

Date Joined Jun 2008
Total Posts : 221
   Posted 4/11/2009 1:42 AM (GMT -7)   
I have recently posted about how I have had three surgeries since the end of March and just got out of the hospital after spending 8 days recovering from and infection that made me lose half my butt.  I just saw one of my surgeons this morning to make sure that everything was okay.  My wound in healing very well according to my doctor and to him I am as good as new.  With the exception that it will take a few months to fully heal. But for him he is done. 
If only it was that simple.  I told him I had a fever of 100.6 last night and he shrugged it off.  I also told him how I am exhausted, in pain, my back is killing, but butt is killing, and I have finals in a week and a half.  And he just shrugged it off.  I am trying to get across to him that although my butt might be healing fine, my healing process has just begun both menatlly and physically for me.  I find it so frusterating talking to doctors.  They can't see anything past what they are trying to fix and once they have done their part they expect you to be fine.  I am not fine but my doctor doesnt seem to care or understand.
Has anyone else experience doctors who cant look beyond what they are trying to fix to see what you are really going through?

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 4/11/2009 1:49 AM (GMT -7)   
YES! Yes, I have experienced it (all too often) and yes, I couldn't agree more.

I think it is simply inappropriate for them to decide that they will only deal with the physical aspects of our disease. They *have* to learn that we suffer emotionally during all these invasive procedures and surgeries, and start looking after us properly.

I'm really sorry you're going through this. You said you are "not fine". Would you like to tell us more about how you're feeling?

Co-Moderator Crohn's Forum.

New Member

Date Joined Apr 2009
Total Posts : 2
   Posted 4/11/2009 2:28 AM (GMT -7)   
I was diagnosed with Crohn's disease in January. Apart from being given a couple of leaflets I have received no advice or help and have just received a referal which is for almost 4 months after the initial diagnosis. In the mean time, despite several visits to the doctor I am just told I will have to wait to see a consultant. I have received no sympathy, just been made to feel I am a bit of a nuisance. After reading these posts I have decided to take Imodium in order to continue with some sort of life!

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 4/11/2009 2:36 AM (GMT -7)   
Oh, Cleveland. That's both dreadful and shocking. I am really, really sorry that you have been treated that way.

Do you have questions that you'd like us to answer for you? If so, just start a new thread (click on the "new topic" button) and we'll do our best to help you.

Co-Moderator Crohn's Forum.

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 4/11/2009 4:35 AM (GMT -7)   
Hi I find it frustrating at times talking to DR's but I am very happy to hear the DR. said you are healing good and things must be looking clean for him to say that... I was surprised how fast my incision healed though... ensure helped me threw and creamed soups.. I remember also how much my little dog gave me so much comfort.. hoping that it won't be long before you get to go home and hopefully you will feel better by then.. thinking of you often.. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still gail
"Blessed are those that can give without remembering and recieve without forgetting ~Aurthor Unknown~

Veteran Member

Date Joined Oct 2004
Total Posts : 2088
   Posted 4/11/2009 5:38 AM (GMT -7)   
eyes I'm guessing, but it sounds like you are in the UK are you Cleveland ? Because that is par for the course over here. My suggestion to you would be to start trying probiotics - what suits one person will not suit another, so you might have to try more than one variety (try a search, but don't ask me which button !) and think of trying an exclusion diet, that will undoubtedly help you find out what foods are worse for you. Imodium works short term, but may have long term disadvantages - for example, I found it made my ability to control the need to go much less.
idea The fact that you are bugging your doctor is good, (s)he is beginning to get the idea of what urgency feels like... yeah Now, feel free to phone up every day or better still, drop a note in by his/her office, saying, "Yesterday I had x trips to the toilet, spent y hours incapacitated, suffered a, b and c symptoms. Is there any chance of a more urgent appointment with the GI ?" Add a counter of how many trips you've made since (s)he last saw you, mention longterm damage like peripheral neuropathy, hypoproteinaemia (sp?) and electrolyte imbalance, and you will be paid some more attention - if only because it is in writing. You might also point out that at present you are not under the care of the GI, so a little help from your doctor until then would not go amiss in an attempt to avoid neglect of a serious condition. Eventually the penny will drop - either (s)he will do something just to get you off his/her back, or because at long last (s)he is feeling how unrelenting the pressure is upon you and your body, emotional rapport will exist where once there was merely inadequate detached professionalism.
Well, we can hope... smilewinkgrin

Texan with Crohn's
Regular Member

Date Joined Dec 2007
Total Posts : 362
   Posted 4/11/2009 6:43 AM (GMT -7)   
I don't much care for doctors myself.

cleveland -
You will find, as I did, that you will get more information from this board than you will from all doctors combined. a) they have too many patients. You are a number. b) most will practice "defensive medicine" - meaning too many unnecessary tests c) you will get no sympathy from most. Many will actually try to define you within a 20 minute period, as if they have known you all your life. Also, you get about a 60 second window to talk, after that it's all the doctor, as if they flipped the off switch on hearing you.

Veteran Member

Date Joined Dec 2005
Total Posts : 1768
   Posted 4/11/2009 6:50 AM (GMT -7)   

Only those dr's who have dealt with any kind of illness can understand the emotional toll this disease takes on us. I am fortunate (i know not many are) to have a surgeon who has Ulcerative Colitis, so he is more understanding than any doctor I've ever had.

If doctors were forced to undergo the tests we have to, they would see things differently.

I hope you start feeling better soon. Post when you need to, someone will be here to listen. (((((((hugs))))))))

31 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05
Currently on Humira, Prilosec, Effexor, Seroquel, Calcium, Vit D, sublingual B12; phenergan, ultram, clonazepam as needed

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 4/11/2009 11:29 AM (GMT -7)   
A lot of docs are like prednisone, nasty but sometimes have to be relied on. Guess that's why I'm on GI number 4 in my 18 yrs of dealing with this DD. I find too many GI's have a terrible bedside manner and no compassion for what we go through and it may be because they don't have the first clue of understanding what it's like for us.

Feel better soon, I totally get where you're comming from.

My bum is broken....there's a big crack down the middle of it! LOL :)

New Member

Date Joined Apr 2009
Total Posts : 2
   Posted 4/11/2009 1:08 PM (GMT -7)   
Thank you so much all those kind kind people who took the time and trouble to reply to my post earlier.  tongue I will follow up some of your advice.  I bought some boxes of 'Complan' today to give it a try for a few days ('nutritious vitamin-rich drink').  My theory being that it will give my digestive system some kind of rest but still hopefully get some goodness into me?  Has anyone tried them ?  I take the point re not taking too many Imodium - I only plan to take them when I really have to - ie when travelling on long journeys.
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