I think I might have Crohns

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Regular Member

Date Joined Aug 2007
Total Posts : 22
   Posted 4/12/2009 7:13 AM (GMT -7)   

Over the past 3 weeks I have had a sudden case of GERD which I have had before but hasn't happened for 2 year. This led into stomach cramping and burning when I eat. I had a catscan and they reported colitis in my ascending colon. My father had Crohn's and I'm at the same age he was when it started for him over the last year I have also had strange rashes and bouts of weakness I can't explain. I would be working in the backyard or something and all of a sudden feel very week have to sit down. My hands would shake some not that I couldn’t lift a 50lbs or something but doing small tasks like lifting a cub of water to drink took small movements this seemed to happen more when I didn't get enough sleep so I always thought more than once I knew I had enough sleep. I had a rash on my legs last year I was doing some plumbing work which I had to work sitting. Where ever my pants or shorts rubbed on my butt or legs I would breakout in Hugh rash. This has never happened to me before ever I have worked on cars and my home scraped my skin many times. The dermatologist said it was immune system response he said because of dry skin some of the spots on my lets were dry but my butt wasn't dry at all. I had a colonoscopy in 2003 for a bout of diarrhea that lasted 6 months the GI found inflammation in my ileum  he said it looked like Crohn's after the biopsy’s came back he said it wasn't maybe a infection. The radiologist noted fat deposits in my ileum and said that was from past inflammation. Yesterday the burning has gone down maybe because of the protonix and I was also given cipro for possible infection. I have an appointment with my gi Tuesday haven't seen him in 3 years. I'm sure he will want to do a colonoscopy which I hate that golite he likes to use. I'm just wondering if this is the start of Crohn's with the strange rash and weakness/shaking issue. My fathers crohns never had biopsy’s test positive for Crohns. Is it common to run in a family? What was your first symptoms? Thanks Kelly

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 4/12/2009 7:25 AM (GMT -7)   
Hey Kelly and welcome to Healingwell. I am wondering if you will start feeling better because of the Cipro as that is one thing they use for some. Crohns can be genetic so I would keep pursuing this. Some have the rash on the lower legs you describe. My initial symptoms were bad cramps and diarrhea. Hope you get things figured out soon.
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Regular Member

Date Joined Aug 2007
Total Posts : 22
   Posted 4/12/2009 12:53 PM (GMT -7)   
I did a google search on Crohn's rash and I found this is probably best described it it is exactly what the rash looked like.

Necrotizing small vessel vasculitis. Vasculitis is an inflammation of blood vessels which leads to bleeding underneath the skin. It can appear as small red spots or larger bruises, usually on the legs or arms.
My hope is it is mild today I was able to have a BM seemed normal looking although I still had cramps after eating not as bad I'm still able to eat.

Post Edited (kell490) : 4/12/2009 4:05:59 PM (GMT-6)

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 4/12/2009 2:22 PM (GMT -7)   
It can most definitely run in families, hopefully you're a mild case, maybe get another opinion.

My bum is broken....there's a big crack down the middle of it! LOL :)

Regular Member

Date Joined Feb 2009
Total Posts : 128
   Posted 4/12/2009 3:39 PM (GMT -7)   
Sorry to hear about the digestion issues Kell, that stinks. I've had Crohn's for fourteen years now (good god) and it's been a yo-yo for me. SOme of it is my docs fault, some my own. I'm on the up swing, though it's still pretty low right now. Let us know how Cipro work.
I am a pre-30yr. old who has been diagnosed with Crohn's for 14 years.  Symptoms change from cramping and weight loss to severe anemia with fatigue and diarrhea. 
I'm DONE (D-O-N-E, DONE!!!) with immuno-suppressants.  Tremble, yee Pharmacuetical companies, for you will not withstand the aggressive onslaught of our healing!
new prescription from natural doc,
3.5 grams Chlorella daily.
4.5 mg Low Dose Naltrexone nightly. 

Regular Member

Date Joined Aug 2007
Total Posts : 22
   Posted 4/19/2009 8:20 PM (GMT -7)   
Thanks for the reply feeling better not sure what is working or not I'm still not feeling totally well. Last few days I feel okay if I eat light meals too much I get cramping. Today I was eating some rice and I get strange twitching and pains in different spots. Seems like my its more then just UC or CD but I wont know until Tuesday when I get the colonoscopy and EGD for my stomach. Ill let you know what they find out I'm hoping if I have to get UC or CD it will be mild and some medication will work.

Regular Member

Date Joined Aug 2007
Total Posts : 22
   Posted 4/21/2009 5:29 PM (GMT -7)   
Had my Colonoscopy and EGD today they found nothing unusual he still suspects Corhn's so I guess the pill camera is next. He is going to order a blood test called IBD Serology 7. After I left the center we went and ate and now I feel pain again so what ever it is has to be in the small intestine.
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