For me it will have to be as a last resort, when I can't handle it anymore, and there is nothing else to try. It's scary to me because you can't get it back once it's gone, and the less we have the worse that is.
Jenn, I am not 'picking on you', but I did want to address this particular feeling/reason and Cleo had also mentioned it. I just wanted to expound on it.
I had been suffering almost constantly for 6 years in a flare that would not come under control no matter what we tried. It had worsened to intense pain and after every bowel movement, I would walk down the hall holding my left side so nothing would jar it and sit carefully on the couch until the waves of pain receded. Any movement could bring on a bowel spasm. Bending forward, shifting my seat, getting in/out of a car or up/down from sitting/laying. It was miserable. I was miserable. My family didn't know what they could do to help me, and there was nothing they could do except supportive care.
I and everyone around me felt helpless.
I finally agreed to surgery, like many, when I could no longer stand the pain and the toilet enforced prison of my home. I had finally reached the point where the pain and inconvenience of my life outweighed my fear of the permanance of surgery.
My thoughts now: If I have an option of surgery to remove a permanantly damaged area...I will do it. That area does me NO GOOD if it is so diseased it certainly cannot function as it was meant to...and I would rather it be GONE instead of allowed to grow and cause me even more pain and distress.
If it cannot do the job it was designed to do...there is no reason for me to keep it.
I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
Crohn's and UC are pretty darn crappy, but if you can't laugh at yourself, you'll cry......I'd much rather laugh.
2001 Dx'd with UC. No remission. No improvement with Remicade. 5/2008 surgery, removal of 6" of left side colon. Dx changed to Crohn's. Remission for 8-9wks after surgery, symptoms returned after resuming 6MP. Changed maintenance med to Methotrexate (MTX) and had great results with IM injections. Nausea and symptoms returning with oral MTX. Switched back to IM injections and am slowly improving.