So first i had a scope almost 2 months ago it didn't go well i was in so much pain and wasn't sedated enough they had to stop there was tears rolling down my face,i was out of the hospital for 1 week and 3 days now and was on Humira and solemedrol through IV for the bowel obstruction no food only liquids of course and i was waitng for a bed in a larger hospital it never came up,so i went up to see my GI and she booked another scope and promised me that she would knock me out so it isn't so painfull plus the new bowel prep is 4 litres of peg lite plus laxitives i go enough now and i only have 12 feet of bowel left so every thng shots through me now. By the time morning rolls around my bum is going to be so sore i won't want to go near it let on have a pipe shoved in my bum,i need another one done cause i keep on having obstructions and there not sure if its from another narrowing (which would mean another stint to hold things
open) or if its inflamation the Humira will help that or if its adhesions which i had removed 3 times now and they can't remove anymore cause i don't have enough bowel left to resect and i also have a huge hernia right above my belly button they won't put in a mesh they said it was to messy and if my bowel ruptured again they have to get through all that mesh first the hernia really is big and it popped out 6 months ago so it limits me to what i can do cause of the pain. So i guess my question is should i even bother going through another scope only to be told there is nothing we can do for you again i don't take rejection well and evry doctor and surgen i have been to in the last 6 months all said the same thing there is nothing we can do for you there is just not enough bowel left to resect and if we do you will have short bowel syndrom and i won't thrive meaning i won't be here long i asked. So i'm scared to say the lest but hopefull they will come up with something even if its another stint that is not so bad recovery time is quick. Thanks for listening to me vent. Your Friend Jenn hope all is well with everyone?????
Had Crohns 17 years had numerous bowel resections,fistulas,fissures,hemmies,kidney problems,fibro,arthritis,dignosed at 13 had GI feeding tube,nasal feeding tube,cental lines,ports,4 ruptured bowel emergency surgeries,TMJ,depression,current meds are Hydromorphone,30 ,Hydromophome,8 ,Ketoprofen,100 ,Trazadone,50 ,Lorazepam,10 ,Zopliclone,5 ,atriplyine,75 ,Losac,50 Tylenol Athritis ,B-12 injections ,Iron injections ,Gravol,75 Predisone,5mg ,Humira,40mg once a week.Still looking for the doctor with all the answers if you find him forward him to me please.P.S my bathroom is the nicest room in my house cause i spend so much time there,i am thinking about installing the computer and maybe a hot-dog stand.