crohns and fibromyalgia

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Regular Member

Date Joined Jan 2008
Total Posts : 67
   Posted 4/21/2009 3:35 PM (GMT -7)   
I am wondering how many of you got fibromyalgia after crohns?

Veteran Member

Date Joined Oct 2005
Total Posts : 1250
   Posted 4/21/2009 4:03 PM (GMT -7)   
I just got a formal diagnosis of Fibromyalgia this past year.....
Diagnosed with Crohn's March 2006, Fibromyalgia Nov. 2008, Anxiety Disorder since childhood
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 10 mg, Miralax,  Prevacid 30mg, Vit B12, Vitamin D, Slow-FE (Iron), Hydrocortisone enemas
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg three times a day, 1mg at bedtime (for anxiety attacks)

Regular Member

Date Joined Jan 2008
Total Posts : 67
   Posted 4/21/2009 4:18 PM (GMT -7)   
What tests did they give you?


Veteran Member

Date Joined May 2007
Total Posts : 1488
   Posted 4/21/2009 9:02 PM (GMT -7)   
I was diagnosed with Fibro about a year after the CD. I attributed mine to the high doses of prednisone I had to take for 6 months (even though there is no scientific data to verify this that I've seen). Steriods are know to break down muscle after long courses of taking them. They just gave me a general office neurological exam and I explained the pressure points in my muscles. Actually I used to think that Fibro was some sort of knockoff diagnosis when they couldn't find anything else. Boy was I wrong!
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Nulev, Glucosamine, Multi-Vitamin, Calcium Citrate, Ultracet. Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, kidney stones & peri-menopausal.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 4/22/2009 6:22 AM (GMT -7)   
I too have been diagnosed with Fibro. A Rheumatologist diagnosed me but various trigger points on my body. I can tell the difference between a fibro flare and my arthritis pain, the fibro pain burns and the arthritis pain aches.
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Regular Member

Date Joined Mar 2009
Total Posts : 318
   Posted 4/22/2009 6:26 AM (GMT -7)   
styxgurl said...
I am wondering how many of you got fibromyalgia after crohns?

Hi styxgurl i had fibromyalgia now for almost 7 years its really painfull and causes bad sleeping problems i went through hell with it still am. Jenn smilewinkgrin

Had Crohns 17 years had numerous bowel resections,fistulas,fissures,hemmies,kidney problems,fibro,arthritis,dignosed at 13 had GI feeding tube,nasal feeding tube,cental lines,ports,4 ruptured bowel emergency surgeries,TMJ,depression,current meds are Hydromorphone,30 ,Hydromophome,8 ,Ketoprofen,100 ,Trazadone,50 ,Lorazepam,10 ,Zopliclone,5 ,atriplyine,75 ,Losac,50 Tylenol Athritis ,B-12 injections ,Iron injections ,Gravol,75 Predisone,5mg ,Humira,40mg once a week.Still looking for the doctor with all the answers if you find him forward him to me please.P.S my bathroom is the nicest room in my house cause i spend so much time there,i am thinking about installing the computer and maybe a hot-dog stand.

Regular Member

Date Joined Nov 2007
Total Posts : 165
   Posted 4/22/2009 7:17 AM (GMT -7)   
I was dx'd with Fibromyalgia in 2003, three years before being dx'd with crohn's. I was having numbness and tingling in my limbs along with severe sleep issues. The Rheumatologist dx'd after blood tests showing nothing, checking my fingernails (apparently looking for something that shows up with RA) and trigger points. Whenever my sleep schedule gets interrupted, my FMS flares! Muscle relaxers and mortrin is what I was orginally treating it with, but now I don't use anything. Stress is also HUGE at causing issues for me!

Fibromyalgia DX March 2003
Crohn's DX Jan 2006 (Symptoms since 96-Misdiagnosed as "female" problems-Major flare during pregnancy in 05 which lead to DX)
1st resection July 2007
Currently on Remicade/8 weeks

Elite Member

Date Joined Jan 2005
Total Posts : 24909
   Posted 4/25/2009 11:01 AM (GMT -7)   
I was just DX with Fibro this past year as well..
I have CD and Pyoderma Gangrenosum as well as anxiety and/ panic issues

Seems that more are being DX with the fibro along with cd doesnt it ?
 DX: Crohns,Pyoderma Gangrenosum,Anxiety/Panic,
Fibro & Other DD

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