Light at the end of the tunnel

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Regular Member

Date Joined Mar 2005
Total Posts : 357
   Posted 4/23/2009 6:02 AM (GMT -7)   
Hi all! I just wanted to share, update...

Here's the condensed version: I had a horrible flare back in January which caused me to land in the hospital for a bit. I ended up on a course of Prednisone that I couldn't get off of, along with new pain meds to go along with all of my other meds. And also to go out of work on disability. I have been taking 6MP for 14 or so years, up to 100mg for most of it, but it has since decided to stop working for me; I've also had 1 resection. My doctor and I decided Remicade would be the next best step; although I was thoroughly terrified of going that route, I knew I couldn't live the way I was.
So I started the Remicade last month. I just received my second infusion 2 days ago (I had to do it later than I should have because I caught a cold:(). I actually noticed a difference not too long after my first infusion. I decided to try to start tapering the Pred since I was feeling better, and I'm actually down to 5mg a day from 40mg! Don't get me wrong, I'm not miraculously healed or anything; I'm still having problems, but just getting to the point that I'm at right now is so encouraging!
Basically I'm sharing my story because I was at the point where I didn't think I'd ever feel better. And I'm so happy that I found something that works, that enabled me to (almost) get off of the Prednisone, and start to be able to DO THINGS!!! And I'm also sharing this to give hope to those of you who are in the same position that I was just a month ago.
Thanks for listening
32 year old female... diagnosed with Crohn's at age 16, then with proctitis in 2005... right hemi-coloctomy April 2001 (removed 12 inches)... currently taking 100mg 6MP, Canasa, acidolpholus, Protonix, B12 injections once a month, 20mg Prednisone, Bentyl and Percoset as needed... just started Remicade

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 4/23/2009 6:19 AM (GMT -7)   
Hey Kriss so glad to hear the Remicade is working so well for you. Thank you for sharing your story, I am sure many will benefit from hearing how well things are going for you now.

Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Regular Member

Date Joined Feb 2009
Total Posts : 161
   Posted 4/23/2009 9:01 AM (GMT -7)   
That's good to hear. I will be starting Remicade soon after being unable to tolerate 6mp.

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 4/23/2009 9:03 AM (GMT -7)   
I'm really, really glad to hear this...keep going!!!
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics given to me by my GI.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."

Regular Member

Date Joined Jun 2006
Total Posts : 289
   Posted 4/23/2009 10:04 AM (GMT -7)   

I'm glad to hear that the Remicade is working for you. I've been taking it for about 2 years now, and it is still helping me (I'm keeping my fingers crossed!). I started having improvement in my symptoms after my first infusion. I started taking it after my worst flare-up, during which time I was also taking steroids. The Remicade has been a big help to me in dealing with Crohns.
Current Medications:

Pentssa, 1000 mg od
Vitamin D
Red Yeast Rice
Calcium/Magnesium Supplement
Nature's Way Primadophilus Bifidus Probiotic
Remicade infusion; every 8 weeks
Ambien, PRN
Seasilver Whole Food Liquid Nutrition

Veteran Member

Date Joined Feb 2004
Total Posts : 6518
   Posted 4/23/2009 10:08 AM (GMT -7)   
Glad the remicade is working for you. It has made a world of diference for me. Keep your eyes on that light. Let us know how your doing..
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

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