I have been receiving Remicade for about 6 months now about every 6 weeks. I do not have a subcutaneous injection port. Everytime I go into the hospital for my Remicade dose, the nurse asks me if I have a port or if she needs to start one. I have talked to my doc about the remicade and it seems that I will be continuing the med for the foreseeable future. I am very seriously considering asking to have a port put in when I am in the hospital for my colostomy reversal in a few weeks. The reason that I want a port is because the nurses have said that my skin and veins are getting very tough to access and they have trouble getting the small site started. I had a treatment yesterday and had to get stuck four times before we got a viable site.
Do you have a subcutaneous IV port? What kind of port do you have? How long have you had it and have you had any problems with it? I just read Randynoguts post about his IV line needing replaced after 6 years. Is that an extremely long time to have one without major problems or normal. Thanks for any information.
Hi atctackett yes Randy had his a long time he got a new one now and it depends on which type of port your thinking about getting i just got my central line taking out cause it was blocked now i'm going in for a (Hickman) on Thursday,some of the ports only last a few years some block easy the central has 3 lines you can get your blood drawn throw it and get your MEDS also i think the hickman has 2 lines which is all you reallly need they do have to be flushed once a day the central anyway but the person you need to talk to is Randy he explained everything out to me so now i understand what is going to happen and the best line to get the ones that last the longest the ones that only need to be flushed once a month,its alot easier after getting in a port or picc i had one now since 6 years cause my veins are shot there tough and they won't thread any more so these lines saved my life really. Look Up Randy. Your Friend Jenn
Had Crohns 17 years had numerous bowel resections,fistulas,fissures,hemmies,kidney problems,fibro,arthritis,dignosed at 13 had GI feeding tube,nasal feeding tube,cental lines,ports,4 ruptured bowel emergency surgeries,TMJ,depression,current meds are Hydromorphone,30 ,Hydromophome,8 ,Ketoprofen,100 ,Trazadone,50 ,Lorazepam,10 ,Zopliclone,5 ,atriplyine,75 ,Losac,50 Tylenol Athritis ,B-12 injections ,Iron injections ,Gravol,75 Predisone,5mg ,Humira,40mg once a week.Still looking for the doctor with all the answers if you find him forward him to me please.P.S my bathroom is the nicest room in my house cause i spend so much time there,i am thinking about installing the computer and maybe a hot-dog stand.