I think that I am done

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Regular Member

Date Joined Sep 2006
Total Posts : 241
   Posted 4/25/2009 9:22 PM (GMT -7)   
I was taken off of Remicaide and started on Humira.  I have had the first 8 injections so far.  My doctor has not asked for any blood work, nor called me after I started the Humira.  Yet I have lost 38 pounds in 6 months and just look like hell.  I am so embarrassed.  I am 5'7 and 112.  I know that he should be requesting blood tests, being on 6mp and Humira but he hasn't.  I am just tired and fed up!  The doctors today just don't care.

Veteran Member

Date Joined Jan 2009
Total Posts : 832
   Posted 4/25/2009 9:30 PM (GMT -7)   
Totally agree with you there, as long as we don't bother them to much they are nice but as soon as there is a big problem they don't understand, they disappear.
24 year old female
Diagnosed with Crohn's disease in December 2008..
Medication - Asacol, Remicade, Entocort, Cipralex and Cerazette.
My wonderful dogs :) ~ www.poodle.is ~

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 4/25/2009 10:32 PM (GMT -7)   
Mine hasn't asked for any work to be done either, and I have been on humira since September, prednisone since last May. No blood tests or bone density tests. And no response whenever I inquire about them. He is such a good doctor otherwise though so I don't understand...
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics given to me by my GI.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."

Veteran Member

Date Joined Apr 2006
Total Posts : 686
   Posted 4/26/2009 7:05 AM (GMT -7)   
Look for a new GI and in the mean time ask one of your other doctors to do the blood work.

Remicade and 6MP

Regular Member

Date Joined Sep 2008
Total Posts : 211
   Posted 4/26/2009 8:12 AM (GMT -7)   
Is there someone higher up you can report this doctor to?

35/f   proud single mom of 2

Diagnosed with GERD/Acid Reflex 2002

Diagnosed with IBS 2007

Diagnosed with UC, then Crohn’s 2008

Current medications: Endcort 3mg 2X daily, Pentasa 2 500mg caps 2X daily, Prilosec 20 mg 2X daily (if needed), Probiotics, Calcuim/Mag/Vit.D. Flinstones multi with Iron and Vit. C 500mg daily

Regular Member

Date Joined Apr 2009
Total Posts : 85
   Posted 4/26/2009 9:44 AM (GMT -7)   
It's funny, you know, because they will sure as heck contact you if they need to be paid!! Otherwise, there is an extreme lack of communication. I had a GI at the Naval Medical Center San Diego (Balboa Hospital) who was awesome about staying in contact. He ordered any and all necessary tests for me, plus he would actually call me (himself!) to see how I was doing and how I was handling any changes. He is by-far the best doc I've had thus far. All I ask is that the doctor actually knows about your history and who you are when you show up for your appointment. Also, it would be nice if they listened to you.... really LISTENED! Obviously, I have a chip on my shoulder, but it's just not right!
Currently taking: Humira 40mg/every other week, Zoloft 50 mg/day, vitamins and supplements
Have taken: Cyclosporine, Pentasa/Asacol, Aciphex, Imuran, Sulfasalizine, Cipro & Flagyl, Prednisone, various pain med's, Xanax
Surgeries: Appendectomy 2001, Ileocecotomy 2007

Veteran Member

Date Joined Dec 2005
Total Posts : 637
   Posted 4/26/2009 3:45 PM (GMT -7)   
britt1449 said...
It's funny, you know, because they will sure as heck contact you if they need to be paid!!

CD dx @ 13 (1987)
Prednisone 10mg every other day
Phenergen PRN
Celexa 20mg day
Zantac 300 - Twice Day
Pain Meds

Veteran Member

Date Joined Mar 2005
Total Posts : 1289
   Posted 4/26/2009 4:15 PM (GMT -7)   
wow.  i think you guys need to find new docs fast.  my docs have always been extremely communicative- to the point of calling late at night or on the weekends if need be.  i wouldn't have it any other way.  maybe i've just been lucky, but i did some research before i chose one...

35 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently tapering prednisone (15 mgs) and I've been on 6_MP for 2 months.
In the middle of a bad flare now for 6 months...lost almost 30 lbs.

Veteran Member

Date Joined Aug 2007
Total Posts : 884
   Posted 4/27/2009 10:11 AM (GMT -7)   
My GI didn't have me do any blood work until I'd been on Humira for about 5 months.  He said he likes to do it every few appointments, but he usually only has me come in every 3 or 4 months.  I've gotta say, it took me three docs to even find one this good and specialists are so busy where I live, you usually don't get an appointment for months.  It's not as easy as just finding another doctor when one doesn't order labs regularly.  If you ask for labs and they say no, then you have a problem, but just because they don't follow up well on their own doesn't mean you should find another doc.  Good luck finding a GI around here who does follow up on his own and makes sure he gets you in to see him in a timely fashion. 
Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 

kyle Nelson
Regular Member

Date Joined Sep 2008
Total Posts : 28
   Posted 4/27/2009 10:30 AM (GMT -7)   
i understand how sometimes you can feel. at my worst i was 110 pounds, and i am a 6 foot tall male. i remember gulping for air after climbing even one flight of steps. the tough stuff always hits at the worst time, i know, but it seems that there is always a turnaround somewhere ahead.
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