I am so impressed....

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Regular Member

Date Joined Sep 2008
Total Posts : 211
   Posted 4/28/2009 7:32 AM (GMT -7)   
I am so impressed with how active so many on the board are.  I work only a few hours a day (between 2 and 4), raise my kiddos and that is about it.  I find it very hard to have the energy to do much more.  I even feel guilty because I am not more active with my kids.  It takes all I have to keep the laundry done and dinner cooked.
How do you all do it?

35/f   proud single mom of 2

Diagnosed with GERD/Acid Reflex 2002

Diagnosed with IBS 2007

Diagnosed with UC, then Crohn’s 2008

Current medications: Endcort 3mg 2X daily, Pentasa 2 500mg caps 2X daily, Prilosec 20 mg 2X daily (if needed), Probiotics, Calcuim/Mag/Vit.D. Flinstones multi with Iron and Vit. C 500mg daily

Veteran Member

Date Joined Jan 2009
Total Posts : 832
   Posted 4/28/2009 8:05 AM (GMT -7)   
I feel the same way.

I don't do anything hehe and if I do I have to sleep the whole day after that

My schedule includes watching TV, taking care of my two dogs, and taking care of myself like going to acupuncture, physical therapy, seeing my docs and so on.

But if I had to work also I think I would just work and sleep.

I admire the energy some of you have.
24 year old female
Diagnosed with Crohn's disease in December 2008..
Medication - Asacol, Remicade, Entocort, Cipralex and Cerazette.
My wonderful dogs :) ~ www.poodle.is ~

Regular Member

Date Joined Mar 2009
Total Posts : 318
   Posted 4/28/2009 9:24 AM (GMT -7)   
Hi Hm i don't know were some people get all there energy thats for sure but when i first started getting my B-12 it gave me lots of energy now non at all my best friend runs her husbands contracting company and 3 apartment building and raises 2 boys and still has energy to go out for a date night with her husband and look after hockey daily running back and fourth to the rink E.T.C but we are sick that make s ahuge differance we get tired easy and run down and my case really cranky. Jenn mad
Had Crohns 17 years had numerous bowel resections,fistulas,fissures,hemmies,kidney problems,fibro,arthritis,dignosed at 13 had GI feeding tube,nasal feeding tube,cental lines,ports,4 ruptured bowel emergency surgeries,TMJ,depression,current meds are Hydromorphone,30 ,Hydromophome,8 ,Ketoprofen,100 ,Trazadone,50 ,Lorazepam,10 ,Zopliclone,5 ,atriplyine,75 ,Losac,50 Tylenol Athritis ,B-12 injections ,Iron injections ,Gravol,75 Predisone,5mg ,Humira,40mg once a week.Still looking for the doctor with all the answers if you find him forward him to me please.P.S my bathroom is the nicest room in my house cause i spend so much time there,i am thinking about installing the computer and maybe a hot-dog stand.

Regular Member

Date Joined Jul 2007
Total Posts : 137
   Posted 4/28/2009 9:51 AM (GMT -7)   
I have my days. Some where nothing gets done but holding down the couch. other times when I am feeling good I tend to do too much and regret it. I do work full time and have a 6 year old and we just started Tball for the first time and so far so good but think it might get worse as the weather gets hotter. I don't do well in the heat. I am just lucky that I have so many understanding people around that yell at me to slow down when they see I am going too far. My daughter also tattles on me. I try to go with it and not fight against it. Talk about fly by the seat of your pants. literally :)

Dx CD 2003 but probably had it 10 years prior

Dx Primary Sclerossing Cholangitis 2006

GB out '95, Appendix out '96, Kidney stent '02/stone removal '02, Resection '04, fistulectomy '06 2x, tubal '05

Currently on 100mg 6mp-50 mg,  and Remicade every 8 weeks, Ambien, predsnisone, humira 1x wk, flagyl, cypro, diflucan, probiotic

Regular Member

Date Joined Jun 2008
Total Posts : 167
   Posted 4/28/2009 10:49 AM (GMT -7)   
SOmetimes I wonder how I get through the day. I made a pact with myself that I would not let this disease control my family. Granted I am exhausted, go to bed early and sleep a LOT more on the weekends, but I try really hard for it not to affect my kids.

I really would like to go on disability and my dr brought it up to me but I am not sure how we would survive financially. My husband is not high enough on salary to live just on his income and the measly amount you get for disability. I am trying to make it until my kids are out of school. (grades 6 and 10 right now) But this year has been a tough one....

Dx with Crohn's in 1997 after 5 years of worsening symptoms.
Resection a few months after dx after 1 month on TPN and IV steroids.
Resection October 2008.
Also have severe asthma.
Fibromyalgia (allergic to Lyrica)

Tried: Pentasa, Cholestyramine, Asacol

Presently taking: now on Imuran, probiotics, calcium, B12.
For asthma I take Advair 500, singulair

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 4/28/2009 11:25 AM (GMT -7)   
I have had this DD for over 30 years. What has always worked for me is to take one day at a time. I am currently in remission with my Crohns, but that doesn't mean life is hunky dorry all the time. I suffer with ALOT of joint pain and fatigue. With the joint pain I take my pain meds so that I can function. As for the fatigue, thats where it gets a little harder. I get B12 shots every week and that helps some, but I also take a nap almost every afternoon when I get home. My husband calls it my nap before I go to bed:)

I was lucky to be in remission when my girls were younger. I can't imagine trying to raise kids now and try to work, I would be in a world of hurt then. Its not easy I can tell you that, but I think I make myself push thru alot and as said before I take one day at a time.

Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
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