Thank you all, for the continuing support!
I truly believe his GI has made 3 major mistakes in her treatment of my g'son this hospital stay. Taking him off the steroids cold turkey, removing him from IV fluids, & letting his hgl count drop to 76 before giving blood. She admits the cold turkey steroids was a mistake on her part.... says she felt she was doing what was best for my g'son by removing the IV fluids.... & maintains my g'son was in no danger with a hgl count of 76. I'm not a doctor... she is young & just starting her practise, nobody is perfect, & it is unfortunate that she has to learn (trial & error) on my g'son. Although, I believe, my g'son has been put through some unnecessary pain & suffering because of her errors, thankfully, no permanent damage has been done. It's all behind us now.
I'm willing to move on, but I do want my g'son to remain in the hospital until his next Humira shot.... just to be on the safe side, as we live over an hour away from the nearest hospital. I am hoping she will take all these things into consideration before she releases him.
His mom is going in to see him later today. Hopefully the diuretics have helped. I've read some posts where some of you think steroid, even Humira may cause fluid retention, so I'm not sure now if the problem was his getting too much IV fluids, too fast. I'll find out more later today, I guess.
I feel like I have monopolized the forum for a long time... thank you for putting up with my worries. Hugs to all of you.
19 yr old Grandson - Dx UC 12/08; DX CD 04/09
Dec 19/08 Hospitalized (1st time)
Apr 9/09 Hospitalized (2nd time, still there) CD flare
Hospital meds: Humira injections started Apr 24/09; hydromorphone for pain; diuretics; prednisone 50mg.
Has been on: Hydrocortisone, Prednisone, oxycodone,
Asacol 800 & Morphine (allergy to both), cipro, flaggyl, vincomycin. Suppliments: potassium, multi vitamin, boost, low fiber diet.