Dreading my vacation.

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Regular Member

Date Joined Jan 2005
Total Posts : 140
   Posted 4/30/2009 12:32 AM (GMT -7)   
I haven't been on a real vacation in over 5 years, so when the opportunity to go to Europe came up I jumped on it. I decided this stupid Crohn's thing has kept me down long enough! My doctor had just put me on Prednisone & Imuran, and for a couple of weeks I was feeling better than I had in YEARS. Well, now that I'm coming down off the Prednisone I feel just as crappy as ever and I'm dreading going on this trip.

My GI doesn't have time to see me before I leave. But I've been in touch with him and he says it'll take time for me to feel better on the Imuran, that I can't stay on the Prednisone. I keep thinking there must be some magic pill!? It's just not fair, all I want is another 2 weeks of peace.

A trip of a lifetime and I can't even get excited about it.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 4/30/2009 6:47 AM (GMT -7)   
Maybe you can bump back up on your Pred and try weaning slower. That would at least get you thru your trip.

Good luck,
Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined May 2005
Total Posts : 4219
   Posted 4/30/2009 7:01 AM (GMT -7)   
I agree... see if you can stay on the pred until after you trip. Other than that immodium and xanax work wonders for special occassions. Just be prepared with what you need in case of an emergency and learn how to say "i need to use the bathroom" in every language you might need to know. You might surprise yourself and feel great!
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 

Regular Member

Date Joined Jan 2005
Total Posts : 140
   Posted 4/30/2009 7:24 AM (GMT -7)   
I asked if I could stay on the Prednisone, 8 pills, but he said I need to come down off of it. Would it be bad to take them anyway?

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 4/30/2009 8:44 AM (GMT -7)   
Just because he said you have to come down NOW doesn't mean that you have to. I think a trip to Europe warrants an extension on prednisone at least until you get back. You deserve to enjoy this trip.
I've changed my prednisone dose several times without notifying my doctor and told him only after when I saw him in an appointment. He is trying to get me on a lower dose so we work together on this, but he is also very forgiving if I increase it to calm things down.
I don't see why it should be so terrible if you do. At least for a once (sometimes) in a lifetime trip :)
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics given to me by my GI.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 4/30/2009 9:19 AM (GMT -7)   
I agree. I have been on prednisone and had CD long enough that my doctor trust that I know what I am doing. If I feel I need to bump myself up for a few days to get over a mini flare, he is ok with it. I just keep him informed, sometimes after the event! But, if your doctor is so hell bent on being so rigid and not working with you, then maybe he isn't the right fit for you in the long run. Not right at this moment, since you have a lot going on. But, we are all different patients. Some of us just want to go to our appointments, be told what to take and do what the doctor says. That used to be me. Others want to take a more active roll and be a partner. Not all doctors are willing to respect that. I had to change doctors because my former GI was very old school and wouldn't answer questions. Just took the do what I say attitude. So maybe when things calm down after your adventure you might need to think about how you want the course of your treatment to proceed, and if this is the right person to help you.

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Regular Member

Date Joined Apr 2009
Total Posts : 85
   Posted 4/30/2009 10:32 AM (GMT -7)   
I would take a bunch of Imodium with me, if I were you!
Currently taking: Humira 40mg/every other week, Zoloft 50 mg/day, vitamins and supplements
Have taken: Cyclosporine, Pentasa/Asacol, Aciphex, Imuran, Sulfasalizine, Cipro & Flagyl, Prednisone, various pain med's, Xanax
Surgeries: Appendectomy 2001, Ileocecotomy 2007

Regular Member

Date Joined Apr 2009
Total Posts : 174
   Posted 4/30/2009 10:41 AM (GMT -7)   
If I had enough pred to get me through the vacation I'd take it... As long as your not increasing the dose greatly I dont see the big deal, you absolutely deserve to get out and have a nice vacation.

And I'd definately have some Imodium with me as well, just in case.

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 4/30/2009 11:52 AM (GMT -7)   
If it were me, I'd bump it back up for the duration of your trip and then wean back down when you get home ( and I have to say I'm about 100% sure my GI would tell me to do so anyways cuz it's not like a trip to europe happens everyday). Ask your doc to load you up with enough and tell him what you're planning, remember they are not the boss of you, they can only try and guide you, but overall it's your body, your health and your trip.

No way should you be dreading your trip, that is so sad, I'd give anything to be able to go to Hungary where both my parents came from.



My bum is broken....there's a big crack down the middle of it! LOL :)

Regular Member

Date Joined Jan 2005
Total Posts : 140
   Posted 4/30/2009 12:55 PM (GMT -7)   
Thanks so much for the support everyone : )

I've only been with this GI for a little over a year. He was recommended after my last GI threw up his hands and said he didn't know what else he could do for me. I've been through a lot over the last 12 months... 2 months in hospital, surgery, another 2 months at home, and now my test results show the Crohn's is back. But I have to say I'm happy with this new GI. He returns my calls and speaks to me like a human.

I wouldn't say I'm the type that always does what what my doctor says. And I think it's put me in a bit of trouble... refusing meds and tests, etc. I wonder if I could have been over this a long time ago. I got engaged last July and gave myself a year to get myself well enough to enjoy my wedding day. The clock is ticking.

The good news is I went to a work lunch today and I'm feeling ok! The last 3 days all I've eaten is soup and Boost (trying to rest my bowels) and it didn't seem to be helping any. But today I ate a plate of seafood and I feel ok, not great, but ok... go figure!

I'm going to go on this trip, I'm going to try and leave the stress behind, and if I need to, I'll up my Prednisone. I'm going to have a good time, darn it ; )

Thanks to everyone who replied. It means a lot.
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