Where do I start?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

New Member

Date Joined Apr 2009
Total Posts : 1
   Posted 4/30/2009 11:28 AM (GMT -7)   
I'm a 31 y/o female.  I was just diagnosed with Chron's throughout my small intestine after a colonoscopy, labowork and the pill cam.. I was started on Pentasa about a week ago... (My GI put me on Lialda a few weeks ago but changed it to Pentasa after the pill cam showed more disease)  I have had symptoms for the last 10 years or so of urgency and frequency... What finally made me get checked out was a lower GI bleed (that My GI thinks may have just been hemrrhoids) about two months ago... 
I am just trying to learn more about this disease and what to do in terms of diet... I am on weight watchers and have been overweight since I was a kid.. I finally have been in a good place in terms of loosing weight (I have an 18 month old and am almost done with losing the 'baby weight' but I still have more to go)  I feel like my symptoms do get worse when I am eating healthier - more fruits and veggies and more fiber.. but I am not sure specifically what foods..   I feel a little lost of where to start to figure out what might possibly help me if I change my diet... Should I cut out all fruits/veggies/?? what else  and for how long?  And how long after the offending food might it affect me (for example if I have a salad for lunch and then at 4pm have to go to the bathroom urgently - is it definitely that salad?)  The dr said that diet won't effect it, but really I think it does.
I feel glad in a way for an explanation for something that I have been trying to hide/ignore/wish away for years.. but I feel sad, stressed, and frustrated too.. and pretty alone right now... I do have a supportive husband and supportive family and friends but I still feel like no one really gets it...  And I feel like I have had some good momentum with the weight loss (35lbs in the last year) and I would like to loose some more before I try to get pregnant again.. But I feel like since I got the diagnosis, my momentum with that is gone and now I'm just confused of what to eat, how not to eat what I want to eat, and really how to try to eat healthy and loose weight but at the same time do what is best for my GI tract...
If anyone has any suggestions for books or websites or what to eliminate from my diet (and for how long) or what to actually eat; I would really appreciate it.. Thanks!

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 4/30/2009 11:38 AM (GMT -7)   
This is the website for the specific carbohydrate diet i.e. the SCD. Many users here have tried it with success. It's not for everyone since it can be very difficult to adhere to, and it simply does not work for some. However, I would definitely give it a try!:


A few other things: Cutting out sugar, high lactose dairy, and avoiding junk food in general has given so many of us good results. There is a multitude of ingredients that we consume every day anyway and yet know nothing about...which is rather frightening.

The fruits and vegetables may be bothering you right now if you're in a flare because they are hard on the system to digest and generally give most of us a lot of trouble until we are in a better place physically speaking.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics given to me by my GI.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 4/30/2009 12:12 PM (GMT -7)   
Diet is very individual for each of us. Like LMills said there is the SCD or Maker's Diet that some have success with or like myself, I eat a low residue diet and it works well for me. You can check out her link or google low residue diet. Not many of us can eat alot of raw veggies and fruits, so those could be causing your problems.

A recommendation I would give is to keep a food diary and keep track of how different foods effect you and avoid the ones that cause YOU problems.

Good luck and welcome to the forum.

Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 4/30/2009 1:12 PM (GMT -7)   
As far as how quickly can something affect you, that is individual too. And it depends on the food and the way it is prepared. If I have a sandwich with a piece (and I mean a just a piece) of lettuce on it, it may affect me as soon as an hour. Something like cooked turnip, might take 24 hours. So a food diary is really your best bet. And as unpleasant as it may seem, you really need to look in the toilet before you flush. Some foods come out looking exactly the way they went in. If that happens, you know its not something that you want to be eating very much of, or at least not until things calm down.

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Regular Member

Date Joined Apr 2009
Total Posts : 51
   Posted 4/30/2009 9:35 PM (GMT -7)   
The best advise I ever got from a Doctor was that I had to find out what worked for me. He was talking medicines and foods. Many people with CD can not tolerate milk and milk products, but for me ice cream it is on of the foods that I eat to gain weight. My wife does weight watchers also and I eat a lot of the same core recipes that she does (because I cook them) and they don't usually bother me. I don't eat salads and raw veggies very often but I do eat a lot of fruits, especially melons. Cooked tomatos shoot right through me, fresh ones don't. ?? Nanners and Zane both have good points for you. Diet is huge with CD, keep a food diary for a while adding one new food at a time to see how your body reacts. Also do some yogurt with probiotics in it to help your guts flora.
Your right it is a lonely feeling having this disease, but there are people here that know what you are going through and can help you with suggestions.
I feel for you...good luck and soak up the joy of a new baby!
Over 30 years experience! Dx 1976, surgery every seven years, the only effective long term drug has been very low doses of prednisone. Refuse to take anymore immune suppressants.

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 5/1/2009 7:42 AM (GMT -7)   
Hi Welcome to Healing Well . I found learning about crohn's and finding out as much info as I could helped. I follow low residue foods and raw fruits and veggies aren't for my system. I started a low residue diet when I was at my worst with blockages and I had two fistula's and abscess so a dietician had me on the low residue diet easy to chew easy to digest foods. I stayed on it. I now take a B-12 shot once a month and a daily multily vitamin and I try to eat a banana once a day.It is a bit depessing when first diagnosed and at least now you know what is wrong you can take some steps to help with the getting better care in your health. I started with borrowing a book from my local Crohn's and Colitis Foundation. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail
"Blessed are those that can give without remembering and recieve without forgetting ~Aurthor Unknown~

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 16, 2017 9:22 PM (GMT -7)
There are a total of 2,906,347 posts in 318,945 threads.
View Active Threads

Who's Online
This forum has 158282 registered members. Please welcome our newest member, Adriano10313.
307 Guest(s), 8 Registered Member(s) are currently online.  Details
Erichardson234, PeteZa, oldbeek, notsosicklygirl, RickyB, The Dude Abides, Manzanita2, Glc100