Hi C&MS! In case you didn't see my other post, the second best place (after the one njmom gave) to get information on use of LDN is the yahoo group for LDN users. The people there are very helpful and they can give you information on how to get it yourself if your doctor won't agree to prescribe. They can also tell you which form is more appropriate for your situation (cream or capsule), and many other helpful hints.
My impression from reading posts on the yahoo group is it seems like more and more doctors are willing to prescribe it--at least for MS! Not many people there who live in the US have difficulty getting it. I would try it in a heartbeat for my son if he was having issues.
Possibly the reason the drug isn't talked about
more is because it is still in trials for CD and because current prescribing of LDN for Crohn's is considered "off label". Some doctors just won't consider prescribing off label due to possible lawsuits. Another possible reason it is not prescribed more is because it is so cheap and therefore does not get promoted like other, high profile drugs. Drug companies make virtually no money on LDN.
There are a few LDN users who are members here. I hope they'll see your post and respond.
Mom to 17 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium, vit. D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Incorporate Specific Carbohydrate Diet (SCD) recipes, too.