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Regular Member

Date Joined Mar 2009
Total Posts : 52
   Posted 5/1/2009 8:23 PM (GMT -7)   

Has anyone achieved remission of Crohns disease through Pentasa?

Regular Member

Date Joined Apr 2009
Total Posts : 174
   Posted 5/1/2009 8:33 PM (GMT -7)   
I've been on it a week today... Seem to be feeling better than I was, but I don't tihnk I had the real bad symptons and inflammation that some others have had.

From what I gather the Pentasa is a milder form of medication as well.

Regular Member

Date Joined Feb 2009
Total Posts : 101
   Posted 5/1/2009 8:39 PM (GMT -7)   
Doesn't that stuff make you lose feeling in your hands forever?

Thats a side effect I read.
I will not be passive.  I will fight until I win.

Regular Member

Date Joined Jun 2006
Total Posts : 321
   Posted 5/2/2009 9:26 AM (GMT -7)   
No remission for me but more good days than bad. I've been on it for 3 and a half years and still have all the feeling in my hands ;P
"Be ashamed to die until you have won some victory for humanity" ~ Horace Mann

Veteran Member

Date Joined Feb 2009
Total Posts : 529
   Posted 5/2/2009 9:28 AM (GMT -7)   
Pentasa wasn't strong enough for me. I also had really nasty side effects from it. I didn't lose feeling in my hands, but I got bad foot cramps, tachycardia, shoulder pains, the worst headaches I've ever had, and lots more. I am taking Entocort now, and I'm just about finished 2 months on it. It felt like it was helping me, but my pain seems like it has been coming back so I may be getting worse again.

Regular Member

Date Joined Mar 2009
Total Posts : 20
   Posted 5/2/2009 12:21 PM (GMT -7)   
Ive been on Pentasa for a while and i feel like its not doing anything and that there is no reason for me to be taking it at all!

Regular Member

Date Joined Feb 2009
Total Posts : 139
   Posted 5/2/2009 1:22 PM (GMT -7)   
I tried it but had a bad reaction to it....
42 year old woman diagnosed with UC 1991, Jpouch surgery 1992, Crohn's diagnosis 2009
Current meds: 800mg xifaxin, 6mg entocort, Humira (started 3/23/09), synthroid, aciphex

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 5/3/2009 6:24 AM (GMT -7)   
I have been on the sister med for 4+ years and doing pretty well on it. My Asacol has helped me to maintain my remission since my last resection.
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Regular Member

Date Joined Jan 2008
Total Posts : 87
   Posted 5/3/2009 8:12 AM (GMT -7)   
I've been on pentasa for a year and 4 months, since I was diagnosed.  I was on prednisone at the beginning to help out and then entocort later for a flare, but other than that, pentasa and only pentasa has kept me in remission (knock on wood).  I am now currently 12 weeks pregnant and other than an AWFUL sinus infection with a four day fever that just broke, I am doing very well!! :-)  And, I still have the feeling in my hands...I haven't had any side effects at all!  It is a very mild drug and it doesn't work for everyone, but I'm glad it's working for me!!  Good luck!
Diagnosed with crohn's in January 2008! 
Pentasa 1000 mg 4 times a day
I am 28 years old and have been married for 3 years.  My husband and I will be trying to get pregnant soon!!

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 5/3/2009 9:22 AM (GMT -7)   
It's worked really well for me actually. I guess it just depends on the person. You won't know until you try it...
And I haven't lost feeling in my hands ever.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics given to me by my GI.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."

New Member

Date Joined May 2009
Total Posts : 7
   Posted 5/3/2009 4:09 PM (GMT -7)   
i was diagnosed in november of 2008 and been on pentasa since then and it has been great for me after a week of having it i lost all the pain in my stomach, and have had no pains since. it cant be a mild medication because i have crohn's VERY severely, i had 3 absesses since november till march and had to have them all drained, and recently had a abdo operation. i am still on the pentasa and it has worked absultely great no problems at all! smilewinkgrin :-) :-) cool

Regular Member

Date Joined Jul 2008
Total Posts : 53
   Posted 5/4/2009 7:29 AM (GMT -7)   

My wife was on pentasa for 4 years which did little to do nothing, she has developed severe depression problems from crohns in the meantime cry She had a resection in Feb. now the doctor wants to give her remecade or humira


Regular Member

Date Joined Feb 2009
Total Posts : 66
   Posted 5/4/2009 11:50 AM (GMT -7)   
Have been on Pentasa (along with Prednisone or Imuran or Entocort) for 4 years, have no side effects and seems to help, although I need something more than just Pentasa. Stopped Entocort to breastfeed our little one 10 weeks ago and feel slightly worse than during pregnancy (was on Entocort whole time as well), but not too bad, just D 3-5 times a day, but the hormones changing afret pregnancy, hard to say.
Diagnosed with Crohn´s in 2005, 3 surgeries, . Pentasa 2x2, Budenoflak 1x2, 30 yrs old mother of two. Boy 05/2005 and girl 03/2009

Regular Member

Date Joined Oct 2008
Total Posts : 114
   Posted 5/4/2009 12:03 PM (GMT -7)   
I have been on Pentasa for almost a year with no side effects. I have also been taking Remicade since November, 2008. I think Pentasa is a maintenance medication to help keep majority of symptoms under control. It is not ideal for most in a flare since it is not a strong medication.

Diagnosed with Crohn's in July 2005. 2 Bowel Resections in 2008.
Currently taking Pentasa 1000 mg 4X/Day, 6MP 100 mg/day, multivitamin, Lopressor 100 mg/day (Blood Pressure), Remicade IV every 6 weeks, Omeprazole CR 40 mg/day, Percocet for pain, Lomotil, & Phenigren PRN

Regular Member

Date Joined Apr 2009
Total Posts : 22
   Posted 5/4/2009 2:59 PM (GMT -7)   
I have been on Pentaza since December 08 when I was first diagnosed. I was also on Entocourt and had been feeling great. Since you can't stay on Entocourt forever my Dr. had be come off it if after being on for 4.5 months. I have been off of my Entocourt for a week and a half now and my pain and D are starting to coming back. My Dr. is thinking of putting me on stronger meds. Pentaza is typically a more mild form of treatment. My Doc started with the least intense meds and is figuring out from there. Just remember that everyone reacts differently to all the meds. The combo of Pentaza and Entocourt worked great for me but unfortunatly we may need to find something else to keep me in remission.
23yr F. Diagnosed Dec. of 2008 after 2.5 years of symptoms.
Trying to get into remission. Currently only on Pentaza 2pills 4X daily.  Also a daily vitamin.

Regular Member

Date Joined Mar 2009
Total Posts : 52
   Posted 5/7/2009 7:24 PM (GMT -7)   
It's a strange med.  It works differently for all.  It was not working at ten pills daily, but almost as soon as I went on twelve daily (500 mg each) my disease seems to be in remission.  WhenI went off of it for my recent colonoscopy, I had immediate problems, but a few days later after being on it, I was great.  It is the only med I am on besides Florastor and Omeprazole for GERD shocked  .

Veteran Member

Date Joined Jun 2004
Total Posts : 1372
   Posted 5/8/2009 7:16 PM (GMT -7)   
I took it for about 5 years and it never helped me. As I tapered off of it my symptoms got better.

Regular Member

Date Joined Sep 2007
Total Posts : 246
   Posted 5/9/2009 2:45 AM (GMT -7)   
dont think it did much for me just recently stopped taking it as my GI thort it was contributing to my D (which is a side effct) hafnt really noticed any other side effects from it
dx 17 aug 2007
21 yrs old
13 dec 2007 resection/temp illeostomy 14 feb 2008 temp illeostomy reversed 
150mg azamun
3000mg pentasa

Regular Member

Date Joined May 2009
Total Posts : 65
   Posted 5/9/2009 3:17 AM (GMT -7)   

I'm not at all experienced in meds and whether they work or not  confused   - I'm just going through that process now. Just thought I'd mention though that the doctor I saw last week wanted to prescribe with Imuran for remission maintenance - when I asked why not Pentasa/Asacol he said these were more effective on CD of colon or UC rather than small bowel/terminal ileum CD. looking through other replies and websites (yes I'm obsessed at the moment!) it certainly seems to be a lesser evil than immunosuppressants.

good luck!

Penny    :-)

Veteran Member

Date Joined Oct 2007
Total Posts : 1190
   Posted 5/9/2009 3:41 AM (GMT -7)   
UK lass are you in London? Do you use St Marks Hospital for GI?

Diagnosis Oct 07: Mild Crohn's Colitis. Also suffer from bleeding Peptic Ulcers. By the grace of God currently in remission. Current Medication: 1000mg Pentasa Tablets x 2 a day. VSL#3. Asacol Suppository at night.

Regular Member

Date Joined May 2009
Total Posts : 65
   Posted 5/9/2009 5:21 AM (GMT -7)   

hi London Red

I'm in Wakefield and struggling to understand all the various aspects of this disease and who decides what about medication etc i should get. That's why I'm interested in the Pentasa thread - seems much more sensible than other stuff; I saw registrar last week (not consultant), ended up really upset and not another chance to get the answers for another 6 weeks. I suspect they think I am an old hand at it cos I had an emergency resection 12 years ago but I haven't been on medication or under a specialist for around 10 years so it was pretty much out of my head until recent emergency surgery - don't want to repeat the experience but equally don't want to be a slave to drugs and all the possible side effects  skull   if not necessary. shakehead


Veteran Member

Date Joined Nov 2005
Total Posts : 1340
   Posted 5/9/2009 5:35 AM (GMT -7)   
Pentasa did not induce my remission but it has maintained it for 1.5 years.
Hoping to stay in remission after the birth of a healthy baby girl. On Pentasa during my pregnancy, went med-free 2 months to nurse (stupid), but back on Pentasa and still nursing.

Regular Member

Date Joined May 2009
Total Posts : 177
   Posted 5/13/2009 8:51 PM (GMT -7)   
I have been on Pentasa for 4 years. I have done incredibly well since I was diagnosed during an emergency appendectomy in apr. '05. I dropped from 2 pills (500 mg) 4x a day to 2x a day while pregnant and nursing a healthy baby girl. about a year ago, I was feeling so well and having so much trouble remembering to take the meds that I dropped to 2 pills once a day on my own. In Feb, I started having mysterious daily swelling in my right ankle that has continued until today. I also have had migratory arthritic knee pains, which I experienced prior to my first flare in 2005. Could not figure out why. Had a colonscopy last week that revealed two areas of inflammation in my colon. I had a small bowel study this morning that showed no inflammation. Prior to the small bowel exam, my GI said he wanted to put me on Remicade. THIS SCARES ME TO DEATH. I have two kids - 8 and 2- and am terrified of possibly putting myself at risk of lymphoma down the line. I asked the GI if I could up my Pentasa again and he said no. Am awaiting biopsy results of the inflammation to see how we'll proceed. Can any of you speak to remicade?
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