Here is my problem with this med:
-By the Weekend I started with severe joint, muscle pain everywhere
-this pain was on and off for almost 3 weeks
-I felt it was the humira, my doc sent me to a rheumatologist b/c I had some joint pain prior to Humira(never this severe though)and he wasn't sold on the fact that it was the med
-The friday before my third dosing (1 shot this time) I started to feel great...all the pain went away...life was great
-two days after my third dosing (1 shot) I had the flu like symptoms which lasted 1 1/2 days...
-stomach feeling ok...doing well
-yesterday I woke up feeling very weak, fatigued, headache, nausea....had mild stomach ache but it was very low and didn't feel like my jpouch or crohn's...it was a nightmare yesteday, felt lightheaded, etc...
-today, still somewhat of a headache..
-4th dosing is this monday
I must add that I had all the lab work done to see if I had a lupus reaction...everything was normal...in fact even my white and sed rate was normal for the first time in a decade! I also saw a rheumatologist who does not feel I have arthritis, but does feel that the initial joint pain may have been my body reacting to the med...again, joint pain is not an issue anymore....could this latest weak, nausea, headache be due to the humira?...I'm due for my next dose monday, shouldn't it already be lessening in my body?...is it normal to always have some sort of reaction after each injection (ie: flu like symptoms)? Does the body finally become adjusted to it?...how long do you have to be on the med for a full therapeutic level? I know, too many questions....it's just frustrating never knowing how you are going to feel and then dealing with side effects from these awful drugs....while it is definitely helping, I'm afraid I may need to stop if the side effects don't level off and its off to remicade....didn't want to do the remicade thing as I'm not comfortable with having to sit for hours...but I will if I have to...thanks for listening....
42 year old woman diagnosed with UC 1991, Jpouch surgery 1992, Crohn's diagnosis 2009
Current meds: 800mg xifaxin, 6mg entocort, Humira (started 3/23/09), synthroid, aciphex