abnormal CD symptoms!!!

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Regular Member

Date Joined Mar 2009
Total Posts : 20
   Posted 5/4/2009 5:12 PM (GMT -7)   
Most of the people on hear, and that you hear about have constant bathroom issues. I was recently diagnosed and don't really know much. I might be  completely wrong but i feel like my sysmptoms are not really abnormal but not common? I have more consitpation than the constant "i gotta go". I take medicine to make me go to the bathroom, and medicine to help with the pain. I get flares, and internal gas (exrememly painful) like crazy. Everyday im in pain, and almost instantly after every meal.
....Does this happen to anyone else? =/
Age: 17
Diagnosed: 2008
Problems: since 2005
Medicines: Pentasa, and i was on Entocort but it made me crazy.

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 5/4/2009 5:15 PM (GMT -7)   
It's the 'either/or' kind of thing. Some of us have problems with diarrhea and some with constipation, but both are normal for Crohn's patients.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics given to me by my GI.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."

Regular Member

Date Joined Mar 2009
Total Posts : 20
   Posted 5/4/2009 5:24 PM (GMT -7)   
Do you know of a specific diet for those who have the same common symptoms?
or, What medications one with the same symptoms takes?
Age: 17
Diagnosed: 2008
Problems: since 2005
Medicines: Pentasa, and i was on Entocort but it made me crazy.

Regular Member

Date Joined Feb 2008
Total Posts : 493
   Posted 5/4/2009 7:05 PM (GMT -7)   
Pain killers can cause constipation as can steroids. There is a great book called Eating Right for a Bad Gut by James Scala. There's also a book you can called 100 Questions and Answers about Crohn's Disease by Amy Barto. I think it would be really helpful to you. I can't remember where but I know there was a website where I got it for free. Maybe Abbott.com? It was suggested to me by someone on this board.

There's a new book about the First Year With Crohn's Disease but I haven't read it. Might be worth a look.

I found Scala's book really helpful.
24+ years with Crohn's/colitis; fistulizing crohn's; ileostomy and proctocolectomy; propranolol and xanax; been on a ton of crohn's meds; praying to get through each day.

Becoming undone
Veteran Member

Date Joined Jul 2007
Total Posts : 927
   Posted 5/5/2009 9:45 AM (GMT -7)   
about the book...100 questions..,I found it on google books...I didn't see it with abbot anymore...
It was quite informative...
"The earth laughs in flowers"

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 5/5/2009 10:49 AM (GMT -7)   
The first year is written by Jill Sklar. She was/is the moderator on another forum I used to participate in. It is quite a helpful book. It takes you through all the different things that you will go through during your first year of having this lovely disease. I read it much further along in my path, but still found it held some useful knowledge. In the beginning it goes day by day then week by week and so on. It is part of a series of books written by people who have the various ailments about which the books are about. But there are lots of resources that you can find at your local library. The main thing is to do what you are doing, which is to educate yourself. Just don't scare yourself. Most of what you read won't happen to you. The majority of CD patients fall in the middle of the spectrum and go about their life having the occasional flare and then go on about their life for extended periods of time. In the beginning you need to find the right combination of medications and then things should calm down for you.

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

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