Woman goes for Remicade, gets chemo

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Date Joined May 2008
Total Posts : 1445
   Posted 5/5/2009 10:11 AM (GMT -7)   
32 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. 12.5mg prednisone. Udo's Choice Probiotics (30 billion). Can't tolerate any iron supplements or infusions.

Tried SCD, didn't work, now avoiding gluten and dairy.

Go Saskatchewan Roughriders!

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Date Joined Apr 2005
Total Posts : 3763
   Posted 5/5/2009 10:38 AM (GMT -7)   
That is really scary!

I can not tell you how many times I have had a nurse try to give me medications that are CLEARLY labeled in my chart and on my wrist as allergies and the only reason they stop is because I always ask what is being given. If I was out of it, or not aware enough to ask I'm sure I would be dead. But why were these medications ordered in the first place. Shouldn't the computer system or pharmacy catch it? I will always ask before something is put into my body, what is that and why am I getting it?

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

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Date Joined May 2005
Total Posts : 4219
   Posted 5/5/2009 12:19 PM (GMT -7)   
I do too Zanne. And you should see the looks I get sometimes. I just say "I'm sorry, I just feel more comfortable knowing what this is."
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 

Veteran Member

Date Joined Feb 2009
Total Posts : 529
   Posted 5/5/2009 12:30 PM (GMT -7)   
Wow that's crazy! It does happen though. Sometimes nurses and doctors are so careless and rush through things and it can happen so easily. Hope this never happens to anyone here!

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 5/5/2009 4:47 PM (GMT -7)   
Wow. That's terrible. Thanks for sharing!
Co-Moderator Crohn's Forum.

New meds thread

Regular Member

Date Joined Mar 2009
Total Posts : 318
   Posted 5/5/2009 6:49 PM (GMT -7)   
The women Psoriasis form NFL Canada and I'm not condoning what that nurse did by all means it was a terrible mistake and there should be consciouses or punishment of some sorts at least the women may lose her job out of this which is clearly her fault she didn'y read the IV bag the color of the Kemo bag is different then the one for Remicade why was she not looking at the paper work this women was on her third infusion,I still to this day ask what is in the bag before the drip starts there are mistakes made down here in our medical day unit we have a chemo room were i get most of my treatment and to tell you the truth the nurses are great but there so over booked they can't get on top of all the patients that are booked for that day its a huge problem here in Canada with over booking some times we can wait months to see a doctor and waiting for tests but we just can't seem to keep our doctors here its sad really.Nancy was her name and got the normal side effects of chemo but thank god she is all right.my question is who got the Remicade that day they could end up with a severe reaction or worse I'm sure this will be all investigated. Jenn (Canada)

Had Crohns 17 years had numerous bowel resections,fistulas,fissures,hemmies,kidney problems,fibro,arthritis,dignosed at 13 had GI feeding tube,nasal feeding tube,cental lines,ports,4 ruptured bowel emergency surgeries,TMJ,depression,current meds are Hydromorphone,30 ,Hydromophome,8 ,Ketoprofen,100 ,Trazadone,50 ,Lorazepam,10 ,Zopliclone,5 ,atriplyine,75 ,Losac,50 Tylenol Athritis ,B-12 injections ,Iron injections ,Gravol,75 Predisone,5mg ,Humira,40mg once a week.Still looking for the doctor with all the answers if you find him forward him to me please.P.S my bathroom is the nicest room in my house cause i spend so much time there,i am thinking about installing the computer and maybe a hot-dog stand.

Veteran Member

Date Joined Jan 2005
Total Posts : 1831
   Posted 5/6/2009 3:03 PM (GMT -7)   
This was one of my fears having Remi administered in the chemo department. I always checked the bag.

Veteran Member

Date Joined Oct 2008
Total Posts : 1343
   Posted 5/6/2009 10:29 PM (GMT -7)   
FitzyK23 said...
I do too Zanne. And you should see the looks I get sometimes. I just say "I'm sorry, I just feel more comfortable knowing what this is."

I also do that. I know what all my meds look like, so if they give me something different, I ask. It is insane the number of medical screwups I've experienced while being in the hospital! There seems to be a major lack of communication among the different doctors and nurses.
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods

Regular Member

Date Joined Feb 2009
Total Posts : 161
   Posted 5/7/2009 3:43 PM (GMT -7)   
Thank goodness the outcome wasn't much worse.
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