New symptoms with my Crohns

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Jun 2006
Total Posts : 229
   Posted 5/8/2009 7:32 AM (GMT -7)   
Hi everyone,
I've posted a few times before.  Brief recap-Have had mild Crohns for 17 years now.  Rarely have flares that get me down.  I take 4 Asacol per day all at once in the morning for maintenance. I just started the Asacol a little more than a year ago.  Since taking the Asacol, I've had more constipation than "D" and always feel a little bloated.
Over the past few weeks, I've been very nauseous in the morning.  It comes on suddenly when I'm getting ready for work in the morning and have even thrown up some biles several times.  The nauseousness subdsides by afternoon and I tend to me fine in the evening. I'm NOT pregnant.  My stomach feels like an inflated balloon.  I don't have severe pain, but I do have tenderness in my upper stomach right in the middle between my rib cage.  I am getting intermittent "Crohns" cramping, but it's not on a consistent basis.  I feel like my food is getting "stuck".  Anyway, I'm just looking for similar stories or advice.  I don't really feel sick enough to go to the Doctor, but I am getting annoyed with beign nauseous.  I'm also belching ALOT more than usual. 

Any thoughts? 

Regular Member

Date Joined Feb 2009
Total Posts : 139
   Posted 5/8/2009 9:11 AM (GMT -7)   
I have two you suffer from Gerd?I often get pain in that area as well as other thought Is perhaps it's your gallbladder? Just a thought...feel better soon....debbie
42 year old woman diagnosed with UC 1991, Jpouch surgery 1992, Crohn's diagnosis 2009
Current meds: 800mg xifaxin, 6mg entocort, Humira (started 3/23/09), synthroid, aciphex

Regular Member

Date Joined Aug 2007
Total Posts : 23
   Posted 5/8/2009 9:33 AM (GMT -7)   
I don't want to scare you but that is exactly how I felt when I had an obstruction. I was always feeling like throwing up in the morning but ok by the afternoon. And the cramping would come and go. I burped and passed gas all the time. I would go to the doctor just to get checked. I waited too long and had to have surgery because of it.

Good luck!!!
26 year old female
 Married to the most loving and supportive man
Just Graduted with my Master's Degree in Social Work
Diagnosed with Crohn's in 2004 after my gallbladder was removed 
Been on Prednisone, Asacol, and Remicade (became allergic to Remicade)
Too many flare ups to count
Been hospitalized five times in the past year (thank you morphine)
Had Bowel Resection October 1st, 2008 (18 inches of small intestine was taken out)
Currently in remission but still taking Imuran
Couldn't do it without my family, especially my mom
Have the greatest doctor in the world and will fight this disease til the end!

Regular Member

Date Joined Feb 2009
Total Posts : 350
   Posted 5/8/2009 10:15 AM (GMT -7)   
that's also how i felt when I had an on and off partial upper bowel obstruction. If it comes on pretty quick after eating, it might be pretty high up and findable on an endoscopy. Mine was about 4 hours after eating, and hard to see - though you can kinda see it on a CAT scan.

that being said, it could be a lot of things (gall bladder etc) so it's probably time to get checked out!!

Regular Member

Date Joined Jun 2006
Total Posts : 229
   Posted 5/8/2009 11:34 AM (GMT -7)   

It definitely does not come on right after eating.  Can I ask more about the on again and off again partial obstruction?  Does it go away on it's own?  How is something like that treated?  I haven't been examined by my current GI ever.  My family Dr. orders my "yearly" colonoscopies and the GI performs the procedure and orders the Asacol for me, but I've not been "treated" for my Crohns for 17 years when I was first diagnosed.  I'm a little anxious about having to take Prednisone.  I absolutely do not want to unless its the only option.  What sort of tests would be ordered to find something like this?


Veteran Member

Date Joined Feb 2007
Total Posts : 1010
   Posted 5/8/2009 12:37 PM (GMT -7)   
I don't understand why you are taking your daily dose all at once? Is that how your physician prescribed it? My understanding of this drug's effect is that it is topical. It has to reach the affected area to be of any benefit, and maximum benefit is derived from its continuous presence in the bowel. Because of that I think the recommendation from the drug manufacturer is to divide the dose, at least morning and night, if not three times daily.

I was on a sister medication, Pentasa, for years and it was recommended that I take that four times a day.

The reason I'm bringing it to your attention is that sometimes the 5-ASA drugs can cause nausea, diarrhea, burning around the anus, dizzyness etc and these effects are worsened by taking the medication all at once.

Just a thought ...

30+ years living with Crohn's.

Regular Member

Date Joined Jun 2006
Total Posts : 229
   Posted 5/8/2009 12:45 PM (GMT -7)   
Yes, I take the Asacol all at once, because that is how it was prescribed to me... I have to admit I fought taking it for a LONG time and was finally talked into it last year when I had my colonoscopy. 

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 5/8/2009 1:57 PM (GMT -7)   
Aronk, I take Asacol too. I take 6 tabs a day. I take 3 in the morning and 3 at night. Maybe give it a try taking it twice a day and see if that helps. I am glad to hear you are at least taking some kind of maintainence med, its best to keep the inflammation down before it does any damage.

You might want to see a doc about GERD. Many Crohnnies suffer with it and can be easily eased with a proton pump inhibitor such as Prilosec. The GERD can cause you to feel nauseous, especially when your stomach is empty. If its not that you could have some narrowing going on. Good luck!
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Nov 2007
Total Posts : 4363
   Posted 5/9/2009 3:56 PM (GMT -7)   
I'm concerned about your "I'm not sick enough to see a doctor," comments, and also that you have never seen the GI for a consult. I think you need and deserve to see a GI and get treated appropriately. You shouldn't have to needlessly suffer!
50 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007. Also have IBS, and had Salmonella Dec. '07
currently taking Pentasa- 4 500mg pills per day, Metamucil and colace for constipation

Regular Member

Date Joined Feb 2009
Total Posts : 350
   Posted 5/9/2009 6:46 PM (GMT -7)   
here's my info on partial obstructions:
in my experience, it's been two things. One was a physical stricture - that was caused by an adhesion lower down pulling it tight, and my food literally was getting stuck. I spent 2 years on a liquid diet. I had surgery for the adhesion and then I could have food pass through. How it was connected to the upper bowel was never figured out, but, it was good to get that fixed. That was a mechanical pulling. No test showed it. so it was lucky they fixed the lower (colon!) adhesion and it happened to fix the upper part.

I also have upper bowel that's rock-like, several loops stuck together. That swells on the inside and then food gives me problems. The swelling comes and goes.

Here's my advice -- get a really good GI doc. That doc is going to order an endoscopy, which *might* show the problem is it's high up. The doc will also hopefully order a CT scan. That might show a problem like #2 problem with me. Also make sure if you get a CT you ask who has the best radiologist, because this is the person you depend upon to read the CT. It's important ot have someone good. In my case (#2) the radiologist totally missed the problem, but my doc read the CT again and it was clear as day.
You mght want to think about this -- are certain foods triggering it? Try a super soft diet, no bread (i still can't eat it), no rice, just a few days with things like ice cream, pureed soups, mashed potatos etc. eat 5 times a day instead of 3 and don't eat any big meals. See if it helps! that's data you can take to a doc.

And on the other topic, GALLBLADDER all you need is an ultrasound. If that comes up positive, you'll be saving yourself A LOT of radiation in tests....Maybe you could get your family doc to send you for that -- asap, because the burping & bile thing and the location OF YOUR PAIN -- are kinda textbook for that.

keep us posted!

In either case you need to move along to getting to the doc, because the last thing you want to do is end up in emergency!!

Regular Member

Date Joined Jun 2006
Total Posts : 229
   Posted 5/12/2009 1:00 PM (GMT -7)   
Just thought I would give an update on my situation... I did finally call my GI and he thinks I possibly have a partial small bowel obstruction... I have some narrowing in the terminal ileum and he thinks this is where my problem is.  He wanted me to have a colonoscopy on Thursday of this week, but I can't due to a work conflict, so I'm going next Thursday.  In the mean time, he put me on prednisone 20mg twice per day and double my Asacol.  UGH!  I did not want to be on prednisone.  Anyway, thanks for your support and advice and I will update more next week after the colonoscopy.  He is going to try and "stretch" the narrowing during the procedure... Sounds fun, right?

New Member

Date Joined Feb 2009
Total Posts : 11
   Posted 5/13/2009 3:04 AM (GMT -7)   
maybe a lot of gas passing through the instenstings i have the same problem

Regular Member

Date Joined Feb 2009
Total Posts : 350
   Posted 5/13/2009 3:35 AM (GMT -7)   
if the small bowel thing is true, you'd best go on a really really soft diet, like yogurt smoothies and maybe added protien powder for awhile, you'll feel so much better. It would be great if you had a stricture there he could stretch and make you feel better. keep us posted.
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, November 19, 2017 1:55 AM (GMT -7)
There are a total of 2,895,293 posts in 317,780 threads.
View Active Threads

Who's Online
This forum has 157383 registered members. Please welcome our newest member, Kellyyyy.
203 Guest(s), 1 Registered Member(s) are currently online.  Details
Big Tasty

About Us | Advertise | Donate
Newsletter | Privacy Policy & Disclaimer
Follow on Facebook Follow on Twitter Follow on Pinterest
©1996-2017 LLC  All Rights Reserved.