My humira experience--headaches

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Regular Member

Date Joined Aug 2007
Total Posts : 277
   Posted 5/8/2009 10:38 PM (GMT -7)   
Welp....  I officially had to say humira wasn't for me.  My last humira shot was on Apr 11th and my first one was on Mar 12th.  I have had a headache now since Mar 12th with no end in sight.  I guess I'm the 10% that has headaches which is a common side effect.  =(  In my case, I have had a headache which ranges in pain from a 5/10 to a 9/10.  The higher pain levels began after my 3rd set of shots. 
I will be seeing a neurologist on the 18th to see if it is a permanent damage thing because my gastroenterologist said it should have worn out of my body by now and there is nothing more he can do for me.  It DID work on my intestines, no pain, could eat ANYTHING but being bedridden because my head felt like it was being bashed and stabbed with hammers and ice picks were the deal breaker.
I am back on the Asacol and Imuran.  He wanted me to try Remicaide but I told him I'd like to take a break and would rather poop and have side pain than have a tummy of steel and not be able to leave the house cause I wanted to blow up my head.
For those of you that it worked for, I'm very happy.  At first I read all the side effects that others posted and got all happy because I didn't exhibit any of them until the headaches came on the 14th.  At first he was saying it was cause of the loading dose which is 4 shots and then 2 shots 2 weeks afterwards.  But it seemed as I took the 2 shots and finally the 1 shot, that the side effects were getting stronger. 
Have a great weekend and happy mothers day!

Newbie - 37 yrs old Diagnosed: 08/03/07
Started Humira 3/14/09.... <crossing fingers>

Regular Member

Date Joined May 2009
Total Posts : 20
   Posted 5/9/2009 7:43 AM (GMT -7)   
I also got a few headaches on Humira - nothing like what you're describing though.

I hope that you feel better soon.

Regular Member

Date Joined May 2009
Total Posts : 51
   Posted 5/11/2009 5:17 AM (GMT -7)   
darn bad headaches I'm going to be put on humira soon but I don't need headaches well hope they stop and feel better

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 5/11/2009 5:24 AM (GMT -7)   
I had some pretty terrible headaches for a while as well. I would end up taking a pain pill just to knock me out because I couldn't tolerate them. They stopped after a period of time though..
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics given to me by my GI.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."

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